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Living Through Migraines!

I went quite a few years without chronic migraines. Yes, I’d have them here and there, maybe 2 or 3 times a year. Since May, 2 weeks before Mother’s Day, my chronic migraines have been nearly constant. Whether I wake up with one, or develop one throughout the day, they are almost every day. I would like to lay in bed, but that isn’t really an option. I go to work, I try my hardest at home to keep up on what’s needed, and struggle I might, but I try to keep going. I feel like if I just lay around, I’m letting the migraines win. Everyone wants me to see a neurologist, but unfortunately none around me are accepting new patients with my insurance. We are now in December of the same year. No real answers to why I’m having so many migraines. Even the ER department is a joke….here, we’ll give you medicine and turn the lights off. Really? They don’t want to try and find the cause? No, let’s just fix you up temporarily and send you on your way. Even my own primary stopped giving me medicine to help…tells me just keep taking Tylenol (ibuprofen, naproxen, aspirin flare up the crohn’s).

When light bothers me I usually wear sunglasses (even inside). My family gets so disappointed in me at times because there’s always something wrong. I know down deep they only want the best for me and I know it’s something I cannot control. I’ve come to the conclusion that whatever it is, it’s not going to debilitate me. If I can live with Endometriosis and Crohn’s disease, I’m sure I can live with constant migraines as well.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • glassmind
    2 months ago

    Thank you for sharing your experience. It sounds like you are working hard to live through and adapt to live with migraine. I do hope for you access soon to better treatment and providers and to increased understanding from family. May you have as good of days ahead as possible. Hugs

  • Allyson.Ellis moderator
    2 months ago

    Hello CSKSMJHP, thank you so much for sharing your experience. I hear how challenging going chronic with migraine has felt for you this year. Living with chronic migraine on top of Crohn’s and Endometriosis is a lot to endure. It is frustrating that you are unable to see a neurologist due to full practices in your area. Is there anyone within a bit further driving distance that might be in-network for you? If your primary care physician is not offering you the help you need in the absence of a neurologist, it may be worth considering a change to a new primary care provider. You deserve to work with someone who makes your health and well-being a priority. Should you decide to consider a new doctor, this article might give you some ideas for how to approach the process: https://migraine.com/blog/is-it-time-for-a-new-migraine-doctor/ You are not alone needing to wear sunglasses indoors and outdoors when bright lights feel painful with migraine symptoms! I thought this video article might resonate with you: https://migraine.com/video/tools-for-dealing-with-light-sensitivity/ Please know we are here to listen anytime you need support living with migraine. Wishing you a gentle day. ~Allyson (Migraine.com team)

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