Losing Precious Time

Hi everyone. I’m am 52 years old and lucky enough to be married to my boyfriend/ best friend/ soul mate for the last 17 years. I’ve had migraines my entire life but they did not become disruptive (& destructive) until about 3 years ago. Mine are best described as bone -crunching pain that starts on the left side of my head accompanied by nausea/ vomiting, dizziness and all of the usual migraine issues with light, sound and movement.

What started as a once a month issue three years ago has progressed to 28/30 days a month. I try working even when I have one but lately they have been too horrible. Though I work at a company that has tried its best to help me out I am currently on verbal warning for termination having used all of my FMLA and vacation time. The worst part of all of this is that I’m losing precious moments with my husband who is in end stage kidney failure. Dialysis is not helping as much these days so every minute I’m confined to bed is a minute I don’t get to spend enjoying time with him. I’m currently in my 17th day of this migraine and even though my physician sent me to the ER the doctor treated me like a drug seeker. They gave me solumedrol, phenergan, toradol, pepcid, zofran and benadryl. When those didn’t help he said I would just have to deal with it. He wouldn’t even try the Depakon I usually get. Even my neurologist is tired of me. Can’t say I blame him. I’m still waiting on a call back because I now need to go on short term disability.

The pain and nausea are almost unbearable. It’s made even worse because I feel so hopeless and frustrated. Being told nothing can be done is devastating. I’ve tried acupuncture, multiple medications, essential oils (though I am just starting to try those).. My husband is supportive and loving even though he feels tired all of the time. He’s the sick one but I’m the one who’s in bed all of the time. Makes no sense. Very long story short is that migraines are destroying my life

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