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Oh my head

On average I get at least one migraine a week. This is an improvement from the three or four a week I used to live with. I make sure I have a constant supply of migraine tablets as life and work must go on. If I had to take off work every time I was struck with a migraine I would loose my job. Its not easy staring at a computer screen and balancing figures while feeling this way.

Not sure if the stiff neck is as a result or one of the causes of my migraine. I smell smoke and taste smoke before, during and after an attack which is really not pleasant. I am constantly checking and asking if something is burning.

There has been occasion when I have not been able to form a coherent sentence or known how to use my cell phone or put a key in a key hole, its as if the wires just don’t connect.

I wish I didn’t have to live with feeling like this. It can affect life in so many ways and be quite debilitating.

I know I am not alone and others have the same problem but still wish there was something I could do to avoid it.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • nlk2hl
    3 years ago

    I realize that the symptoms of chronic migraine are legion and have experienced many but I am concerned with the descriptions in this article because they are all also early warning signs for stroke – it would be a good idea to tell a neurologist about this particular incident just to be on the safe side! Good luck and I hope you begin to feel better.

    Robin D

  • Donna Marie
    3 years ago

    There are times that I feel helpless. I’ve gone through 2 rounds of Botox. They are not a cure all, but they help preventing about 5-6 migraines a month. I also suffer and I mean suffer from Cluster headaches. I don’t know if it’s possible, but I feel that I had a migraine and a cluster at the same time. It was excruciating. I almost went to the ER but I was afraid too. My family just doesn’t hear it

  • Casper6
    3 years ago

    Donna You are not alone. There is plenty of people who suffer these migraines. We ALL have felt the hopelessness at one time or another. But don’t ignore the extremely bad migraines. If you feel is is not your normal one get to your doctor or go to the ER. Ask a friend or neighbor to take you if your family will not. Take care of YOUR SELF. Don’t others tell you how you feel.

  • DonnaFA moderator
    3 years ago

    Hi Donna, I’m so sorry to hear that you are struggling and lacking support. Please know that we’re always here to share support, or just to listen. Please feel free to share any of the articles on the site, or even invite your family to visit. They may want to visit our caregivers forum where they can ask questions of other caregivers and family members.

    We’re glad you’re here. -Warmly, Donna ( team)

  • rosie.smiles
    3 years ago

    Hi Nina1,

    Thanks for sharing your story…I feel for you–I used to have horrendous migraines. I had them more often than not and sometimes I just prayed to die. Nothing worked for me, and according to the doctors I really had tried everything. have you ever heard of migraine surgery or are you interested in learning more about it? I finally had migraine surgery six months ago, and it was almost like a miracle. I am 100% migraine free! It’s amazing! The surgery was totally worth it. I don’t want to be pushy, but just want to let you know that surgery is an option and often works when all else fails.

    I hope you get relief.
    Take care,
    ~Rosie.smiles 🙂

  • Lisa Robin Benson moderator
    3 years ago

    Hi Nina1,

    Thanks for sharing. You really describe vividly and accurately what it feels like to live with migraine. My hope is that with studies being done all the time we can find new and better treatments and also get to the cause of migraine.

    On the stiff neck question, I thought you might find this article helpful:

    Also, you mentioned looking at a computer. I am sensitive to the light of the computer screens when I have an attack, and I find these glasses indispensable:

    Hope all this helps, and feel free to reach out any time.

    Be well,
    Lisa Benson

  • DonnaFA moderator
    3 years ago

    Hi Nina1,

    I hear your frustration. It is hard with a lot of the symptoms to know what came first, the chicken or the egg.

    We’re always here to share support or just to listen. Thanks for being here and for sharing your story. -All Best, Donna ( team)

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