Recently Diagnosed

One day (January 2018) I was at my computer at work and I had what I can only describe as a slow and total eclipse of my right eye. No pain, no dizziness just a black spot that rose from the bottom of my vision to the center, turned blurry and went away. I went to urgent care, they thought it was a T.I.A because I didn’t have a migraine. Two days later my speech was slurred, I struggled to find words, I had developed some rather moderate cognitive decline. I began to stumble when I walked, my hands and face were numb. I was taken to the E.R. The MRIs were clear, I was completely healthy. No stroke.

I was referred to a neurologist. I continued with these symptoms. He tested me for Primary Progressive Aphasia, Dementia, Parkinson’s, ALS, MS, etc etc. 8 months of testing until the monsoons hit and I went in for a nerve conduction test in my legs. I had a slight dull head ache and had no symptoms at all. It was the first time the neurologist had heard me speak fluently. He finally was able to put it together as Persistent Migraine Aura. In the 8 months I have lost my job, I am losing my house, I cant drive, and I have to be involved in the confounded social security system. I am hoping the lamictal l will work for me because I have lost everything.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (3)
  • Nancy Harris Bonk moderator
    7 months ago

    Hi Rhartleb,

    I’m so sorry to hear things are so difficult right now. You’ve found a wonderful community here at Migraine.com – we understand and are here for you!!

    Getting a new diagnosis can be frustrating, but also a relief so you can learn all you can about your particular diagnosis and get the proper treatment.

    Try not to lose hope, if this medication doesn’t work, there are over 100 other medications and supplements that can be used to treat migraine attacks.

    Have you tried keeping a detailed migraine diary to see if there is any patterns or triggers that can be identified? If not, I encourage you to keep one for a few months. Here is information to get you started; https://migraine.com/blog/keeping-migraine-diary-basics/.

    Speaking of triggers – try to stay hydrated, keep a regular sleep schedule and don’t skip meals – these things help me.

    I hope this helps,
    Nancy

  • Rhartleb author
    7 months ago

    Thank you Nancy. I ve started a “care book” awhile ago since I was collecting doctors. It has all their notes, test results, and my symptom diary. Im now tracking my food and keeping a record of external factors going on like weather, stress level how much excersise my mood as well. The doctor didnt ask for any of it but I hes a busy guy and I thought I would help him out. He wants to write a paper on me because he hasnt heard of anyone who has had a silent migrain with all my symptoms without a fluctuation for so long. I am ALWAYS in an aura and never have really have a headache. Its so bizarre. But hopefully not for the rest my life. in a weird way Im wishing to be a normal migraine reciever. That makes sense to.me but not this.

  • Nancy Harris Bonk moderator
    7 months ago

    Frustrating, isn’t it? Great job keeping track of your migraine journey.

    I wonder if an app like Migraine Buddy or the like (I don’t receive any compensation from any of them) would be helpful?

    Keep me posted,
    Nancy

  • Poll