TMS Trial

I feel like I have tried everything. These miserable headaches have been plaguing me since I was a teenager and I am now 65. I have been on beta blockers, epilepsy drugs, antidepressants, calcium blockers, Namenda, ace inhibitors and other drugs that I have forgotten. I have tried the Cefaly machine, botox, accupuncture, herbal supplements, and a variety of other things.

For awhile, some worked. But the headaches always come back. I am tired of having my life disrupted by pain. I am tired of not being able to play with grandkids, sit in the sun at the pool, take walks when it is windy, overcast or sunny. But there really isn’t a choice so I try the next drug and the next one and the next–hoping something will finally work.

Several months ago, I asked my doctor about the TMS device by Spring. He said that it was only available to those in a trial and he tried unsuccessfully to be part of the trial. The company is doing a trial on 500 people, 30 at each facility. He told me he had a relationship with the neurologist at Mayo Clinic in Phoenix and got me in the study.

Two weeks ago, I began the trial. I use the device in the morning, at night, and as needed for migraines. I have been having about two significant headaches a week. In the two weeks that I have been using the device, I have only had one migraine a week. The research assistant said that it is cumulative and that it is supposed to reduce headaches the longer you use it.

It’s too early to know if I have had two good weeks (with only one headache a week) because I was lucky or because the machine is working. I am cautiously hopeful.

I thought I would share this so that others who are as desperate as I have been can see about getting into the trial. Unfortunately, after the trial is over, the cost of the machine is $250/month and insurance doesn’t cover it. Honestly, I don’t care. If it works, I would pay anything. I am really tired of the pain and what it does to my life.

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Comments

View Comments (3)
  • Marcus
    4 years ago

    Thank you, LindaG, for what you’ve shared. I’ve had migraines since I was a child. I got a bit of a respite during my teen years and young adult, but then they came back episodic in the late 80s, and then July 1994 then became transformed chronic daily. I’ve had those ever since, even though I too have tried pretty much everything under the sun. I’m 62 now, and have pretty much resigned myself to living with it the rest of my life. Every day, in and out. At least with various meds, the worst symptoms are kept at bay, and the pain too. And I now even have a spouse who is extremely supportive.

    I’ll be pulling for you. Assuming it works, I’ll be extremely happy for you!! And maybe there will be another little window of light of hope for me to try it should it be approved.

    Regardless, I’m sorry for the toll it has taken in your life. No body should have to deal with all you have had to handle. You must be an extremely strong person to have endured and survived all that.

    Well, here’s best wishes.
    Marcus

  • Katie M. Golden moderator
    4 years ago

    LindaG,
    Thanks for sharing your story! It can be quite difficult to get into some of these studies and I’m so glad you were willing and able to do it. What you’re doing can help millions of sufferers in the future!

    Please keep us updated as you continue to use the TMS. Oddly, I just read a story about the man who invented this machine. He’s an 86 year old inventor! And depending on how these studies go, it’s possible for the TMS to help others deal with different types of chronic pain.

    Maryland Inventor Chases Ambitious Dream: An End To Chronic Pain

    I’ve got my fingers crossed that it works for you!
    -Katie
    Migraine.com Moderator

  • Jenn Lebowitz
    4 years ago

    Hi LindaG-

    Thank you so much for sharing your story, and for being part of the community.

    I’m so sorry about how much you’ve had to go through, and I really hope the relief you’ve found so far continues to get better and better. I also thought you might find these articles helpful/interesting: http://migraine.com/blog/holding-on-to-hope/ and http://migraine.com/blog/holding-on-to-hope-with-chronic-migraine/.

    Please do feel free to keep us posted on how you’re doing – and thanks again for sharing your story with the community! We really appreciate it!

    Best,

    Jenn (Community Manager, Migraine.com)

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