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Weather, Weather, Weather!

I first started having migraines in my late twenties. Back then everyone thought they were sinus headaches but my sinuses were clear and I rarely get colds. When I reached my mid-forties I began having headaches every 4 out of seven days. After an MRI and a sleep study with one neurologist and no relief I switched to another doctor. This doctor understood right away and put me on Topamax. I did much better and it really curtailed the headaches.


After being on Topamax for 10 years I began getting very large kidney stones. I tried to tell the urologist after the first one that it was the Topomax but he wouldn’t believe me. After the second one a year later I took in the research that I had found on the net and showed it to him. I took myself off the Topomax gradually and the migraines have returned full force. Since I have several drug allergies I am limited as to what I can take. No preventatives seem to be working for me now.

My main trigger is weather, especially strong storms that range from OK to MO. These migraines usually last three to four days. I don’t really get visual aura but do smell things that aren’t there. The whole left side of my head hurts, eye, teeth, ear. Plus I have a spot that gets really warm and my scalp is sore to the touch. I’m also extremely dizzy and confused. Sometimes I take off work but am really worried about being demoted or let go because of the migraines.

I have tried massage therapy, wigs (to keep mild pressure on my spot) changing my diet (cutting out sugar, caffeine, some fats, artificial sweeteners) but nothing seems to help. I get really depressed when I’m in a migraine sequence and have to be careful what I say or act upon. People say they understand but I don’t really think until you’ve had headaches all the time that you really know what it’s like. I don’t make plans anymore because I never know if a headache will strike or not.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • zippy36
    5 years ago

    The weather changes always give me a migraine: especially when it is going to rain. I also have tender spots on my head during my migraines. It feels like bruises.

  • winifred53 author
    5 years ago

    I know exactly how you feel. It’s getting so I can predict the weather!

  • Not Carly Simon
    5 years ago

    This winter was hell. I was bedridden every weekend and worked with a migraine every weekday. I charted my migraine diary with a weather chart a couple years ago and it did indeed match up. Every time a new front moved in, I got a migraine.

  • winifred53 author
    5 years ago

    It was hell for me, too. Every weekend there was a snowstorm and every weekend I was in bed or on the couch.

  • marti
    5 years ago

    I can’t take Topamax because of the horrible side effects, so my neurologist started me on Zonegran, another antiepileptic. It helps, but the weather is the one thing that gets me every time. If it storms, then I hurt.

  • Katie M. Golden moderator
    5 years ago

    My doctor just mentioned Namenda to me but I have the same problem with low blood pressure, so we’re going to hold off for a while.

    I hope the increased dose in Paxil helps. It sounds challenging to find drugs that work for you that you aren’t allergic to! I’m glad you are in the capable hands of a specialist.
    Best wishes to you!
    -Katie

  • Katie M. Golden moderator
    5 years ago

    Winifred,
    It’s so frustrating when you can’t control a trigger like the weather. I’m sure this time of year is especially bad for you with summer storms. Migraines can be very isolating.

    Are you taking another preventative now since you’re off of Topamax? There are a few other meds that are good substitutes with less side effects. Are you seeing a neurologist, or more importantly a Headache Specialist? Since your Migraines are dictating your lifestyle, I hope you are actively seeking treatment from a doctor who is trained in headache disorders. If not, here is a link to find one near you:
    http://www.ucns.org/globals/axon/assets/10300.pdf

    I wish you the best!
    -Katie

  • winifred53 author
    5 years ago

    I’ve been working with a migraine specialist. He put me on Namenda XR and I had a bad reaction to it. I have low blood pressure so can’t take high blood pressure meds. Right now he’s upped my anti-depressant Paxil (which I tolerate really well) by 10 milligrams. My drug allergies are really a big hindrance as I can’t take any anti-inflammatory meds.

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