too young, too many

I have had migraines since I was about 13, and I’m 27 now. I can’t really remember when they began, why, how or where. Between keeping a migraine journal/diary with weather, menstrual cycle, food, sleeping times & exercise I am just not sure what else I can honestly do.

I have seen countless neurologists and migraine/headache specialists. I have been in an in-patient & out-patient treatment program specifically for migraines and the treatment of migraines & head pain. I have also been diagnosed with occipital neuralgia. I have been under-prescribed, over-prescribed, detoxed from both and started over again. I have weaned off of all of my medications & am now only on one (out of 9). I am kind of just at my wit’s end at this point & do not know where to turn next for answers.

I wonder if it will ever end, but I realize it is a chronic illness that I’ll live with forever. I’m not even a mom yet, so of course I wonder how parenthood will effect my life. I allowed one set of doctors to prescribe me tons of medication for preventative care, only for me to realize about a 1.5 yr later that these medicines had more side effects than anything. My regular physician helped me slowly taper off, though it was a struggle.

I still have good days & bad. I’m in constant pain throughout my neck, occipital nerve area & upper shoulders. I am nauseated most every day for some reason or another causing me to throw up. All of these issues together definitely alter my mood & more often than not tend to make me a little grumpier at times. I’m tired, all the time.. but too much sleep will trigger a migraine, yet not enough sleep does too. Would love to find a way to just live a little more normal of a life, for people to understand what I/we are going through on a daily basis…

I have had Botox, nerve blocks, trigger points. Torodol injections and Phenergan injections when the pain gets bad enough. Physical therapy helped some but really just learning the stretches to sit at work to do them on my own is the most helpful thing I took from it.

There has to be a more helpful, non-invasive way to treat this condition.

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Comments

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  • margaret
    4 years ago

    Hi ENSK,
    I completely understand what you are going through and I went through almost the EXACT same thing. I am 40 now and my migraines are almost completely gone. Here is the article that saved my life…literally.
    http://www.chatelaine.com/health/wellness/migraine-therapy/
    If you want non-invasive therapy…this is it. I will tell you that it is a process and can take a few months and it can be costly BUT having said that…I know that there is no price for having a life. I would do it 10 times over to feel how I feel now and not go back to that dark place. I wish you nothing but the best and hope that whatever treatment you do, you will find some peace and comfort in all of this. Good luck!

  • Katie M. Golden moderator
    4 years ago

    ENSK,
    I feel your pain. I’ve weaned off drugs, started new ones, been in-patient and get frustrated at the results. I focus now on managing the Migraines as best I can to lead a semi-normal life.

    Are you interested in any natural methods? We have a great resource on a multitude of natural/ homeopathic/ and self-healing. I’m sure you’ve tried some of these, but I just wanted to give you something to see if you were interested. I personally feel that yoga makes me stronger and helps me get over the Migraines faster.

    http://migraine.com/migraine-treatment/natural-remedies/

    Best Wishes!
    -Katie
    Migraine.com Moderator

  • Jenn Lebowitz
    4 years ago

    Hi ENSK,

    Thank you so much for sharing your story, and for being part of the community. It sounds like you have been through a ton, and we appreciate your sharing so honestly and openly.

    While you may get more feedback from the community here, your post reminded me of these two articles, which I thought might be helpful: http://migraine.com/blog/holding-on-to-hope/ and http://migraine.com/blog/tried-them-all/. I truly hope these are helpful in coping.

    Additionally, I thought you might be interested to know that we also have forums you are welcome to post in. They can be accessed here: http://migraine.com/forums/.

    Please feel free to keep us updated on how you are doing. We’ll be thinking of you.

    Warmly,

    Jenn (Community Manager, Migraine.com)

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