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Diagnosis of Migraine & Headache Types

5 years of a constant headache

  • By Lenna

    I have had a constant 24/7 headache for over 5 years. The first year the pain was horrible and then my Neurologist started me on botox and along with topomax and varapamil the pain level has been reduced to a level I can live with most days. The doctor thinks I have a rare form of migraine. I have been to a headache specialist with no luck and had an MRI, spinal tap, etc. My question is ….Has anyone else had anything like this? I have forgotten what it feels like to not have my head hurt.

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  • By Meaghan Coneys Moderator

    Hi Lenna,

    Thank you for your post. I am so sorry to hear about the pain you have experienced, however it does sound like you have found a treatment which has provided you with some relief, which is great to hear. While I do hope community members will provide you with some of their insight and personal experiences, I thought I would send along a few articles. The first one discusses various types of chronic migraine – https://migraine.com/migraine-types/. The following provide self care tips for managing symptoms while in the midst of an attack – https://migraine.com/blog/a-list-call-for-creature-comforts/, https://migraine.com/blog/community-responses-what-are-your-go-to-techniques-that-bring-you-comfort/. Also, perhaps you will find these articles informative as well – https://migraine.com/migraine-and-mental-health/eight-emotional-stage-of-living-with-migraine/, https://migraine.com/blog/coping-skills-save-the-judgement-what-matters-is-finding-what-works-for-you/, https://migraine.com/blog/migraine-and-mindfulness-bruce-almighty/. They provide ways to cope with the emotional impact of chronic migraine. Again, thank you for your post and reaching out to us. Please continue to reach out when needed and keep us posted on your progress. We love hearing from you.

    Warmly,

    Meaghan (Migraine.com Team)

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