Welcome to the Basilar Migraine Forum
Welcome to the Basilar Migraine Forum
Hi Tiffany!! Yes, I have basilar migarines. How often do you get them? I get about 10 a month give or take & I just started topamax. Have you ever tried it?
I have had the symptoms of Basilar type Migraines for about 5 years. It took forever to rule out other disorders. At first they happened many times a week and came on without much warning (I also lose memory a few minutes before I pass out) so I was hitting my head a lot. They tried seraquil, and other psychiatric drugs. I had an adverse reaction on the psych drugs and ended up in the hospital twice for suicide attempts (due to the drugs) Obviously I stopped the Neuronton and other drugs that alter my perception of reality. Finally I started Verapamil a calcium blocker I think. My attacks went from many a week to about 5 per month. I can lay down most of the time now without hitting my head. I also vomit while unconscious so I have trained myself to lay facing down and to the side. I have mini headaches a lot but they are not the kind that make me cry like a little baby. I take hydrocodone for the mild pain and Delaudid for the major attacks. I would love to hear if anyone has had more success with other less addictive medications that are not psych meds. Also any coping with nausea and disorientation would be great. I currently am on promethazine for nausea but over time it causes permanent shakes. (I would love to avoid that) Also I take alka-seltzer which helps a lot.
Sandy, topamax is in the same class as the ones that made me suicidal. Gabapentin (marketed as Neurontin)Lamotrigine (marketed as Lamictal) It does not happen with every patient but I seem to get the rare crap. Here is a link to the FDA that I should have read. http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm074939.htm I sincerely hope it works for you. Please pay close attention to your mood and thoughts. My warning signs were a zombie like motion without emotions except anger and frustration. I felt isolated and misunderstood. My relationships were greatly affected. So if you find this happening it could be the medication.
I had a migraine recently that felt like someone was crushing my head with a ton of bricks. The pain intensified over a period of about 2 minutes. My arms became stiff, my arms and body started shaking, I was wobbly couldn’t walk straight, and i had double vision. I also Had slight fever. I felt like I was going to Die. Was this a possible Basilar Migraine?i finally slept then awoke with my regular Classic Migraine.
Although there is a genetic marker it makes no sense to test for it because it really does not help diagnose Basilar Type migraines.
When mine first presented i had seizure like symptoms similar to the ones T-Lee describe. My eyes still flutter but I dont know if they still roll back. I lose consciousness every so often but not as often or severe as before starting Verapamil.
It is frighting. I feel a physiological warning as if I were about to be hit with a meteorite. With bad attacks I have only a couple seconds before I pass out and where ever I am I must lay down on my stomach (so i dont drown in vomit) immediately.
I have been tested for halo migraines to no avail. So the default diagnosis from the Neurologist in San Francisco was that I have basilar migraines and pass out from the pain. It is actually the pain that makes me lose consciousness. I dont shake any more (at least not as much) I just go limp except for the eye thing. But of course i rely on others to tell me how I act. My memory also fades before and after the attack.
Light kills my head so I bought those “as seen on TV” High Def glasses that let you see better at night than your bare eye. These have really helped. I can wear them anywhere any time and the light does not affect me as it does without them. Also, I have put up rails, canes and even have a small wheel chair. This allows me to move around while I am off balance. The balance can be off for hours and is one of the warning signs.
I have no idea if halo migraines are connected with basilar migraines but we can have more than one thing going on at once. Please keep us updated. Again I highly recommend the glasses. They cost about ten dollars at Walgreens.
Hi my name is Holly.
I was diagnosed with Basilar Migraines. I never even thought it could be migraines because I lacked a headache before the “attack”. I get dizzy, have a ringing in my ears, my vision fades to black and I pass out. According to onlookers I roll my eyes back into my head and shake a little. I wake up without any knowledge of this, only a vague sense that I was dreaming (but a dream without pictures, just words like I was talking inside my head to myself). I have headaches other times but always thought they were unrelated.