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50 Years & Older Living With Migraine

Being admitted tomorrow.

  • By mela14

    I made it to Jefferson headache center today and the doctor immediately wanted to admit me today. Unfortunately, they didn’t have a bed so I am going back tomorrow morning. I was there 2 years ago and he wanted to admit me but I was so afraid and then my health got side tracked with other things.i had hernia surgery twice and a reaction to immunoglobulin therapy twice. The reactions to the immunoglobulin product each set me back months. I needed to go on steroids for each reaction and had to do a slow steroid taper with each incident. That in itself was horrific and caused me more migraines. They actually told me the reaction to the IVIG was aseptic mengitis. They did not do a spinal tap but said that his sometimes happens as a reaction to the IVIG. The migraines were brutal.

    Anyway, I thought I put that behind me and lived along with my daily right sided crushing headaches and weekly stabbing in the eye migraines but three weeks ago I woke with a killer headache/migraine/tension headache. I had a tough band across the back of the neck, into the traps, down the spinal colum , up the back of the head ,across the forehead and temple. In addition I woke feeling drunk and was off balance. I was told by a different neurologist it was vestibular migraine. Relpax helped the stabbing in the eye but the rest was a nightmare. I have yet to completely recover.
    I had trigger point injections with lidocaine only in the neck and mid back and muscle relaxants to help. It’s been a rough 3 weeks and still struggling. Today was a straightforward decision by the doctor to admit me.
    This has been going on so long and has gotten so worse. Of course I have my fears about the treatment but at this point don’t feel I have a choice. I cant live like this and need help. I want to get back to my normal daily headaches that still allow me to function. I know it’s
    Complicated by the fact that I have different migraines/headaches going on at the same time and of course anxiety setting in when they occur or don’t go away.
    I will try to post my experience while I am there. I

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  • By mela14

    Made it in today. PICC line in. After a long day finally starting the meds. Anxiety is high. Everyone here has been so kind, caring and considerate.
    I have a crushing headache and am praying this will help.
    I’ll keep you all posted.

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  • By Skyychick

    I hope you are feeling better. I started getting cluster migraines when I was 21…32 years later….cluster headaches. No doctor has ever figured out what causes them, but I do seem to get more in the Spring, probably due to seasonal allergies.
    A year ago a neurologist introduced me to Zembrace. A sumatriptan auto-injector has been a tremendous help to me. I used one this morning because a migraine woke me up. I had to use 4 injectors over the past week.
    Cluster headaches are called suicide headaches….Clearly I can understand why.

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    • By MDM

      Skychick,So sorry to hear of your cluster headaches. I cannot imagine the pain you go through! Well… maybe I can. Anyway, the imitrex I use gets rid of most symptoms for around four hours. Then, usually I get most of it back with somewhat reduced pain. Since my attacks last 72 hours or more imitrex isn’t really doing the job.Glad its helping you. I wonder if it’s a different formulation than generic I am using????
      Something strange to me: my neurologist, to whom I go for botox, refuses to treat my depression . She wants me to see my general practioner! What’s up? I know depression is considered psychological, not neurologic but they are comorbid.I have had to take anti depressants for many years.

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    • By Skyychick

      I’m sorry the shot don’t help. I know how frustrating it is to have meds do nothing. I am using the prescription form of sumatriptan called Zembrace. I have found that it helps quickly and lasts quite long, sometimes from 12 hours to several days, depending I guess on what the triggers are and cluster headaches are so stinking unpredictable and unknown that they literally have no idea what causes mine. I can have the world at my feet, no stress, happy, and sleeping like a baby, then “BAM!!” I wake up in agony and that can last for several days to several weeks. It’s happened in every season, in different states, and under various circumstances and life situations over the past 32 years. Nothing meshes….I just go day by day and pray for remission….whatever it is…it is lousy. I hope this message finds you feeling better.

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  • By mela14

    Hi skyychick
    I’m glad you found something that helps you. Cluster headaches are awful. I’m sorry you have to go through that. I hope your head feels better today. After injecting yourself.
    I woke with a killer right sided headache. My right eye was totally closed. I had righ side nasal congestion….totally blocked and pain right side of head. I felt pain now going to the left side. That started about a week ago.
    My face totally swollen. I think they gave me too much fluids. Which I just confirmed with my nurse and doctor. They said the first day they give you a lot to flush everything your system. Totay I will get a much smaller size infused more slowly.

    The doctors and nurses here are very attentive and come immediately when you call them. My experience with the staff has been good.

    My previous neurologist called that type of migraine Chronic Hemicrania Continua. At times it gets better but right now I am in a bad flare. It’s now 2.5 hours after waking and the headache has subsided. This is the way it goes for me when it’s bad.

    The crushing bright side is better. Maybe all the meds is helping. Who knows.

    Have you ever tried oxygen for your cluster headaches? I tried it years ago and it did not help me but I hear it helps cluster headaches.

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  • By mela14

    MDM
    I know what you mean about the depression. Unfortunately,I’ve never been able to tolerate them. I’ve tried about a dozen through the years.
    I used to take imitrex too but have switched to Relpax. Less side effects for me. Have you considered Treximet? It’s imitrex with Naprosen, an anti- inflammatory in it.
    Do you think you are getting rebound from the imitrex? My neuro said it can happen with the Triptans too. It’s so hard to figure out how to help yourself.
    Be well

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    • By Skyychick

      I read that rebounds can happen with over the counter medications, as well. It’s difficult for people who suffer from chronic pain of any kind to know if the pain they feel is rebound pain from the medications or not. I know that I will only use my Zembrace when the headaches are so bad I cann’t open my eyes for whatever light might get in or bear the sound of my own heartbeat because the sound is literally deafening. The struggle is real. I sure wish there were some clinics in my area that specialized in cluster headaches or some clinical trials of medications. I’d sign up!

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  • By mela14

    Finally home from the hospital. The last 2 days were not pleasant. I wound up with the worst IBS pain ever. I think it was a combination of the meds, hospital food and anxiety. Whatever the reason, I expected that I would receive some care for it as I was in a hospital. Instead, I was faced with an urgent situation and a skeletal night staff that lacked any direction. I was writhing in abdominal pain for hours. I took a Bentyl for spasms that really didn’t calm my gut down much. I had to beg for an X-ray to make sure it something else wasn’t going on. Finally they got me some type of suppository and I used it not knowing that it was a laxative which cause me more pain and and still nothing happened. Their solution was another suppository an hour and a half later. Still no bowel Movement. I begged them to call a Doctor and finally someone from the ER came to see me. His all happened while the nurse was yelling at me saying yelling “there is nothing more to do for you. What do you want from me? Your body is not accepting this treatment! You should go home.” I even called the ER because I was in that much pain. They said I couldn’t come to the ER if I was a patient in the hospital. They then called the nurse and somehow they called the doctor on call who was in the ER and he came up to see me. X-ray ok probably severe IBS cramping. It still continues today. Yes this treatment was too much for me and the only thing in their agenda was doing the headache protocol. They were not prepared for the hiccups along the way. One of the headachebdocotr came to see me in the morning while doing rounds and again wanted to push the headache agenda without dealing with his other crisis. I decided to leave and thought 3-4 days of that treatment was all I could handle. They gave me trigger point injections with lidocaine to the neck, traps and back of head. I think I’ve had Too much lidocaine. It made me feel off balance and my legs felt very heavy. Not able to walk correctly. Very scary. I’m Home now and although I rested last night the stomach cramps continue and I still have that heaviness in my legs. I woke during the night with fear and anxiety over this ordeal. I’m praying that it was all worth it but am so afraid that this present situation will take a while to calm down. Yes my anxiety has gotten the best of me. It was too stressful on my body even though the doctors started with a low dose of all meds because of my drug sensitivities and low weight of 85 lbs. my initial nurse Erica and the assistant Pam were awesome, Jill was professional…somehow the ones that followed seemed like they couldn’t be bothered with anything that was outside of their headache protocol and my situation was a bother to them. I’m sure they were happy to see me go. Here’s a news flash….life happens and things are not always black and white. Each person should be treated as an individual and what works for one may not work for the other. The abdominal pain started at 9 pm and continued through the night. Often times the nurses came to my room to find me rolled up into a ball rocking with pain. The chaos that ensued was something out of nightmare! I finally was able to get some Sleep at 5:30 am only to be awaken for bloods and vitals at 7 and the dr doing rounds at 8:30.
    I’m in my safe place now…home… with my husband by my side picking up the pieces of this ordeal and helping me to get better. I pray that it will subside soon as the IBS cramps are brutal. Now I realize why my neurologist never wanted to try DHE with me. He felt my gut wouldn’t handle it. My headaches are varied. I’ll have to learn to deal with each one as it comes. Right now I can’t even think about anything but healing myself and my gut from this ordeal. I’m praying the headaches will stay calm while I am doing so.

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  • By mela14

    Thanks for the response and info Nancy. I had to call the headache center last night because I was still not well. My gut was resting and slowly healing but the heavines in my legs became worse. I could barely support my own weight. The doctor on call who was the same doctor that discharged me and encouraged me to go to the ER. She didn’t know why my legs were buckling. She was concerned there was some spinal cord inflammation. In the ER they ran bloods and did a head CT scan. Everything was ok but they admitted me and I am now waiting for a lower back MRI. I’m sure it will be fine. I somehow think all the meds and too much lidocaine messed me up. Of course anxiety doesn’t help. I saw a neurologist here at my local Hospital who felt that perhaps the lidocaine trigger point injections to the back of the head combined with iv lidocaine affected me this way. Then my anxiety set in. Hopefully this will get better fast. I need to be able to get up and get about! I got a migraine today as I’m sitting here waiting for my MRI. I took a relpax hat I had in my purse and it’s took some of the edge off but not completely gone.
    Oh well….maybe tomorrow will be better.

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