I’ve been getting Botox injections for 3 years, and it’s the only thing that has reliably helped me. I’ve tried almost all of the preventatives with little or no lasting effect. However, despite the Botox, the daily migraines (that I’ve had for almost four years straight) have increased in severity over the last 6-8 months. I blame ankle surgery and the subsequent drop in activity for the spike, but they’ve definitely been continually getting worse over time since my first migraine in 1998.
My insurance company, who I’ve been with for only the last year, decided the Botox doesn’t work for me and has denied treatment. I got their denial letter 2 days before my December appointment, and since I don’t have $12k to pay out of pocket, I went without. The headache clinic I go to has been really helpful with the appeal, and now I’m waiting for the insurance to review my case for a 3rd time.
While I wait, though, the Botox wears off a little more each day. It’s really strange to have feeling back in places that have been numb for 3 years, and to be able to move parts of my forehead and scalp that were mostly frozen for so long.
As the Botox wears off the migraine pain is changing and worsening, as I knew it would. While it’s good proof that the Botox does actually work for me, at least partially, I’m a bit afraid that as it wears off further I’ll suffer more and more.
Does anyone have experience with a Botox injection delay? I’m currently 4 months out from the last injection and will likely have to wait until March, which will be 6 months. I feel like I was finally getting the injections to last 10 weeks, where it was more like 7 or 8 in the past, and now I’m afraid I’m back to square one. I would really appreciate hearing how others may have dealt with a delay like this, and whether the cumulative effect of regular injections was reset by the delay. Thanks!