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Medications & Prescription Treatment

Cefaly

  • By Lil

    Has anyone actually tried the Cefaly headband treatment? My daughter received a RX but we haven’t purchased due to expense. We have exhausted every drug option. Cefaly is made and sold from Canada. It is FDA approved but not covered under our insurance.

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  • By Howard Fites

    I’ve had mine for just a few days. I have chronic migraines made worse by my over dependence on Imitrex. One reason I was willing to make the investment was the hope that it could help me break my medication habit.

    First impressions are good. My first treatment was in the evening prior to bed. I had migraine onset at the time, typical of most evenings for me. It did not stop the migraine but I did feel better and had a great nights sleep until about 4 am when I awoke to a full migraine. Took my Imitrex.

    Second treatment was much the same, the feeling after is great, at least for me. I still got a migraine and took my meds. Had another really great nights sleep. That is NOT typical for me.

    Day three. Great day. head is 100% pain free, something I never say. Just had my treatment which can be painful in itself but it’s bearable. Going to bed shortly and hope to have another deep sleep. No Imitrex today.

    If you are very sensitive to pain Cefaly may not be for you. I think you have to be consistent in using the device or it may not do you any good. When you are pain free it can be difficult to put this on knowing that it will cause you to have 20 minutes of pain.

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    • By Howard Fites

      UPDATE: I’ve had two additional days of treatment. No migraines, no drug use. I’m sleeping very well and only have the aches and pains you might expect in a 60 year old man.

      Yesterday was a prime migraine day. All day was high anxiety as I had to deal with my mother’s estate (she passed away last month) and my rather unhinged brother. On days like this I am guaranteed a whopper migraine. I had a mild pre-migraine, pressure in the right temple, right sinus congestion, right eye pain. I went to dinner and had a martini which also tends to contribute to onset of a migraine.

      After returning home I had my treatment, went to bed with no pain and slept very well. Feel fine this morning. I’m very encouraged.

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    • By Howard Fites

      UPDATE 2: Well it’s been just over a week and all has been good. It had to happen and yesterday was the day. I awoke to hot Santa Ana winds, the worst for me. This was accompanied by a migraine, mild by most standards perhaps a 3.5 on a 10 scale. There was a time when this would have been nothing and I would simply ignore it. I lost that ability when I found Imitrex and I now have zero tolerance to head pain.

      By noon I did the Cefaly treatment and it offered some relief and I fell fast asleep. Good for me not so good for work. The migraine returned in a few hours so I folded and took an Imitrex. Migraine was gone in about ten minutes. That evening I took my usual Cefaly treatment and went to bed. I feel great this morning.

      So in just over a week I have taken 1 Imitrex and had 1 migraine, way down from my daily Imitrex and daily migraine. Overall I feel more alert, more rested. I don’t have that post Imitrex zombie effect that was driving me nuts.

      Only side effect from the Cefaly is I do get redness and have in fact bled on two occasions in the area where the electrode is applied. This might be related to the very intense laser face lift I had about six months ago. Vanity.

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  • By Michele

    As soon as the FDA approved Cefaly in the US, I got a prescription from my doctor. Unfortunately insurance won’t cover it yet, but I am eager to try it so I decided to pay out of pocket and order online. Several websites said they weren’t taking orders due to a backlog since the FDA approval. I finally found http://www.roxon.ca, where I ordered the device and a 3-pack of electrodes for $419.97 CANADIAN, which equated to $384.85 AMERICAN (that included $20 for shipping). I ordered online 3/25 and the website said it would be 14 to 21 BUSINESS days before it would ship. I have called the toll free number twice and been assured that I should receive it around the first week of May, if not sooner. Roxon in Canada (www.roxon.ca) does NOT require a prescription even if shipping to the US, but they clarified that Roxon in the US (www.roxon.us) DOES require a prescription, which I find odd. In the meantime, I have received Facebook postings from Cefaly.com, stating that the device cannot be ordered without a prescription. The Roxon customer service rep in Canada said they are NOT affiliated with Roxon in the US, which I also find odd. I’ve read a couple of posts here stating that the devices being shipped from Canada are being held up in US Customs, so I’m very anxious to see what happens with mine. Hopefully it will ship late next week. I’ll keep you posted…

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  • By Howard Fites

    What a horror story. I wrote to Celafy in Belgium to see if I could get better information then what they had posted to the US and Canada web sites. With a little nagging they told me the exact day the device would become available from the US website. In the mean time I got my prescription which I sent in prior to my order and I requested they pre-process it so it would be cleared as soon as my order was placed. I ordered on a Wednesday from the US web site and I received the device the following Tuesday from Belgium. Not bad, Belgium to California in under a week and it had to get through three different custom offices on the way.

    I paid $374.00 US for the device which included one electrode and I ordered two additional packs of three. Shipping included.

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  • By laurazap

    I have had my cefaly for a few months now. I like mine, it works well on mild to moderate headaches and migraines but does not work well on severe migraines. I have been able to eliminate mild/moderate.
    I like the way it feels on, especially with a bad attack even if it doesn’t get rid of the tingly feels good.
    they say you can use it preventatively so I try to use it daily but haven’t done that so I’m not sure if it works that way.
    I’m still trying to get my insurance to cover it, they say they cover TENS units which this is, but for some reason won’t cover the cefaly.

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  • By Sharon

    I am a 58 year old woman that has had migraines since I was 12 years old. They are severe. They feels like someone opens up my head, throws shards of glass and razor blades in there and shakes it up.

    My main trigger is change in the barometric pressure. I can have upwards of 12 migraines a month; sometimes lasting as long as 9 days. I have tried everything from daily preventive medication to acupuncture to diet to biofeedback. Nothing works. Feeling I had nothing to lose and going into it very skeptically, I purchased a Cefaly. I have been using it for a month now.

    I cannot believe it, but I am almost migraine free. I had one migraine during this time. I used the migraine setting and became very sleepy. I cleared my calendar and slept. When I woke up my migraine was gone. Gone. That has never happened. The best I could hope for was gone-the-next-day.

    There are virtually no side affect from the Cefaly. If anything, I am sleeping more soundly and feel more clear headed than I have in years.

    The product claims that you can go about your daily activities while wearing the headband (20 minutes), but I think that’s a bit unrealistic. I have found it best to lie down during that time.

    I follow the directions and use it at least once a day on the preventive setting. 20 minutes out of my life to be virtually migraine free; an extremely small price to pay. Is it worth $400? Absolutely!! Best money I have ever spent in my life. What price tag can you put on being virtually migraine free?

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    • By Howard Fites

      Very nice video Potteryvirge. I had the same problem with weather change which now seems to be the one remaining trigger that I have. I switched to Cefaly because of my addiction to Imitrex which I took every day of the month, no exceptions. This of course started to cause rebound Migraines and I would have about 20 days a month in pain.

      Today I no longer crave the Imitrex and my Migraine days are running about 5-7 a month. It’s not that golden 100% but it’s a massive improvement to me. I do now use Imitrex on those days but I don’t get the rebound Migraine as I did before.

      Something that is rarely mentioned is the effect a migraine free existence has on your relationship with family, friends and of course your significant other. Not have to say those horrid words “I’d love to but my head is killing me” is a real joy.

      Congratulations on your victory over the tyrant of the Migraine!

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  • By Leslie

    Lil,

    I’ve had mine about a month now and to be honest it does feel good while I’m using it but I had had no relief from my migraine!

    I have had a chronic migraine for over 2 years now with only a couple months of a reprieve. Nothing the doctors have tried has seemed to break it so I had my doubts with this but the 375.00 cost was worth it to try it, if it did work!! — Unfortunately it hasn’t so far….for me….but it might for you!!

    Just a few things I’ve found with the headband…. – it’s best if you sit up straight or lay down to use it. If you lean over forward the band disconnects from the sticky strip and you have to start over with the session. – if needed, I have found it is ok to do one session in the morning and one in the evening, but I wouldn’t do more than that. – make sure you have all of your makeup off 🙂 or the sticky strip won’t stick well.

    Good luck with your headband, and if you have any other question, please feel free to email me!!!

    Leslie

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    • By Howard Fites

      I’m sorry you haven’t had the same success I’ve had. I’m two weeks in with one migraine and used one Imitrex. That’s huge for me. I stick to a rigid routine and only do a treatment once a day just before I go to bed. I sleep very well after.

      Keep at it, perhaps things will change for you. I certainly hope so. Good luck.

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  • By supernac

    Anyone have one for sale? My primary refused a script, told me to see a neurologist. Currently dr shopping but would rather avoid the hassle and expense if I can.

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  • By Michele

    Supernac: You can order without a prescription from Roxon Homecare in CANADA. Mine took 9 weeks for delivery, but it includes all 3 settings versus the one approved in the US that only has 1 setting.

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  • By supernac

    Hi tcfly,

    I can’t find a way to order it on that site, I can find the device but they don’t seem to have a way to purchase it. Did you order before the fda approved it? I found some sources overseas but I am afraid customs may snag it on the way over. If I understand correctly they will destroy it if they realize it’s a controlled device and I don’t have a script. Not sure how likely that is to happen, tempted to roll the dice. I have yet to find a Dr willing to write a script for this, the manufacture looked for dr’s in the area that have prescribed it, st Louis is the closest, about four hours away.

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    • By Michele

      Supernac: You can call Roxon in Canada directly at 514-326-7780. I was also worried about US Customs, but it came directly to my house with no problems. Good luck!

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  • By Pendragon

    Seen this device recently, and it sounds impressive, but I’m a little cynical of any form of cure/treatment device, especially with a price tag like that. I understand that migraines are individual and results may vary, but has anyone used this device with a chronic migraine and found good results? HFites, sounds like you got good results, but you sounded like you used it more as a preventative than an abortive treatment.

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  • By Howard Fites

    I do use it as a preventative only. I stick to a strict schedule, same time every day no exceptions. I can’t say why it works for me but it does a good deal of the time and well worth the investment.

    It’s odd because one of the self devised “cures” I used in the past was to eat very cold sorbet very quickly until I got a blinding brain freeze. In many cases that would kill a migraine. This device feels much like a milder version of the same. It’s a slow buildup of pain to the nerve between your eyes and it slowly reduces at the end. I’ve fallen asleep with it on a number of times.

    I know that some people see the device as a medical joke (the Wonder Woman band) but when you’ve had migraines for 40 years and something appears to help I’m all in.

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  • By Michele

    Not sure that I’m qualified to give an accurate review yet, but after 2 weeks of daily use I see a slight improvement in the severity of my migraines, but not really a reduction in the frequency just yet. I have tried the abortive setting without success, but I am dedicated to using the preventive setting at least 20 mins every day. I can tell you that I don’t drink as I find that alcohol is migraine trigger for me. However, I had my bachelorette party on Saturday night and did indulge. Although I was hungover and sick as a dog on Sunday (stomach) I didn’t have a migraine, or even the slightest headache. This is definite improvement for me! I had extreme vomiting to the point on dry heaving, and still no headache or migraine — amazing. I can only attribute this to the Cefaly.

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  • By laurazap

    I live in Toronto and I bought mine at Costco so no perscription needed. They had the best price. I think it was $360 ish and came with a few electrodes. They also sell replacements. My ins xox is suppose to cover units like this but because it’s the first of its kind being that it works only on the head they won’t cover it. I’m appealing.
    I haven’t been using mine every day and it sounds like I should be. I do get good results from it when I have a mild to moderate migraine but if it goes full blown then nothing stops that but an Axert. I’ve been suffering terribly and it’s been getting worse the last few years. I go for acupuncture weekly and I take topamax but the last 4 months it’s been a daily occurance. Can’t handle the pain. The cefaly has helped. I finally broke the spell and I’ve started taking butterbur. Not sure if it’s a coincidence. So going to start daily and see if I get better results.
    Try Costco for ordering. You can only try it online.

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  • By Leslie

    I’m so glad to hear that there are some people getting some results from this headband!! Congrats on finding something that works 🙂 !!!!

    Unfortunately, I am slowly coming to the conclusion that nothing is going to help me and that I’m just going to have to deal with the pain. — I even tried a naturalist who did muscle testing on me. My husband and I have been doing her suggested treatments but have had no results yet.

    On a 1-10 scale, my daily chronic pain runs 6 to 8. If I’m not asleep, I’m in pain. I had really, really hoped that the headband would work because it sounded like it would hitting the right nerve endings, unlike the other 10’s units I’ve tried in the past. Alas, I’m hoping at some point I can sell it to someone whom it might help!!

    🙂

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  • By Sharon

    I’m having the same blessed results as Hfites is having. It appears that we are both using the Cefaly faithfully. I am continuing to use it every morning and every evening for 20 mins. on the second setting. I started using mine the end of April. I have now used it for over 60 days. To date, I have only had one migraine which occurred after the second week of use. I have had two days of feeling “fuzzy” with a mild headache, but not the horrid migraine pain I am use to. I was able to take 2 aspirin like a normal person and the pain went away. I never understood what Aspirin was for. Apparently it makes a mild headache go away like they say on TV! Ha!

    I have never (never) gone over 1 month without a migraine. This is a life changing device for me.

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  • By Richard891

    I received mine March 22, 2014 and have had no migraines since. I was a 3 a week migrainer (average) for some 24 years prior.

    During those 24 years I tried Botox, acupuncture, many meds, had my wisdom teeth pulled, forehead facelift, many neurologists, many diets, several headache specialists, etc. all to no avail.

    I am now 79, a working engineer, 40 hours a week, and my wife has noticed my improved outlook. We are square dancers and have 6 kids and 18 grandkids.

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  • By Sharon

    I am glad to hear that Richard891 is having the same results that Hfites and I are having. Hopefully the “Cefaly has changed my life” club will continue to grow.

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  • By JLWelk

    I have just received and started using the Cefaly on 7/8/14. The Mayo Rochester Headache Clinic gave me an RX for Cefaly and told me to give it a try because they think I’m rebounding from too many triptans and Aleve. I’m a 55 year old female that has 20 to 25 migraine headaches a month. I had a small headache today before I used Cefaly at 6PM and I’m instructed to use it every day regardless of condition. I noticed I became REALLY groggy immediately following the first treatment and started nodding off, and would have slept unintentionally…and I am a serious night owl! Mayo has me keeping a daily pain/med diary for their studies, so I have already cut down triptans and Aleve. I’ll keep you posted on my experiences since I no longer have a life and am very compliant.
    I am not certain if Cefaly makes me sleep, since I’ve only tried it once, but that would be an awesome side effect!

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    • By Howard Fites

      Our experience is much the same. I started using Cefaly to deal with my near addiction to Imitrex which I was taking daily. I’ve been using it for several months now and my use of Imitrex is way down. In the last 60 days I’ve used six pills and half of those were used on what proved to not be migraines. I’m rather conditioned to think any pain in my head is the start of a migraine.

      I also have a tendency to fall asleep after using the device. I use mine every evening as part of getting ready for bed and I find my sleep has been quicker to come and deeper overall. I did have much the same reaction to Imitrex which also tended to make me sleep for short periods after taking.

      I used to keep an Imitrex with me at all times in fear that I might be caught somewhere without one. When traveling I lived in fear that I might run out. These days I hardly give them a thought and I’m feeling much better no longer being in that Imitrex haze.

      Good luck with your Cefaly experience.

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  • By Sharon

    I, too, have been conditioned to think that any pain in my head is the start of a migraine. Since using the Cefaly, outside of the one migraine I had after 2 weeks of use, I have had 3 days were I have head pain, but I’m learning that it’s not going to turn into a full blown migraine. This new type of pain does not last more than a day. It is not debilitating pain like a migraine is. Previously, once the aura and head pain started, it would turn into a migraine that could last up to a week or more. After 90 days of Cefaly use, those days appear to be over for me.

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  • By Jaishreema

    So glad for those who have found such relief, and success, with Cefaly!!

    I got mine 3 months ago and do use it religiously. Sometimes once a day, sometimes twice, and sometimes I keep it on while I watch tv at night for 3 cycles or an hour. Sometimes it takes the edge off my pain. But it has so far not reduced the amount of migraines or overall severity. I am still getting daily major migraines on a scale of 7.5-9 a day. Like some others, I too have recently been taking too many triptans and probably having MOH’s. (I take generic Maxalt which isn’t working so well anymore so I’ve switched to generic Imitrex).

    The unit does feel good usually. I can’t use it though if I wake up with a migraine in the morning and am nauseous. I sometimes use it lying down with ice gel packs under my neck and fall asleep alot from it.

    I don’t know how high to make the vibration.

    For those for whom this is working miracles, could you describe exactly how you use it? How much “pain” do you get to until you turn the sensation to neutral? Do you do it right before you fall asleep (and then wake up a little later and put the electrode away on its little piece of plastic and into a ziploc bag?) I know, I’m getting very specific, but I’d love and would really appreciate it if you could describe exactly how you use it, so I and others could get the same fantastic benefits you are getting!! I would give my life to have a migraine free day or month like some of you are having!!

    Thank you so much. And much love.

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    • By Howard Fites

      Jaishreema,

      I have the US version of the Cefaly device which has just one setting. I believe it’s equivalent to the middle setting of the international version. The instructions for the US version are to use it preventively one time a day at the same time every day for 20 minutes. I have tried to use it to ease pain but that never works for me.

      I never alter the programed 20 minute routine. I have noticed that I need to be careful of the placement of the electrode. At first I placed it low between my eyebrows but have since raised it a bit higher and the treatments have become more intense. Sometimes it can be borderline painful but not beyond my ability to handle. It does make my forehead and scalp go numb. On the odd side it seems to clear my sinuses and often makes me feel very tired and I will fall asleep after. I’d advice you scale back your treatments to one time a day, 20 minutes and allow it to cycle as high as it’s programmed to go.

      Keep at it and good luck.

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  • By Sharon

    I am using the second setting as well. I use it first thing when I wake up and the last thing before I go to sleep. In addition to no migraines, I find I am more clear headed during the day and as so many have said, sleep better at night.

    Wishing others the same blessed results that I have had..

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  • By Jaishreema

    Thank you HFites and Potteryvirge!

    Wow, HFites, you go all the way to the highest possible setting (in pressure?) I’ve gone pretty far into it with intense pressure but somewhere I usually pause it so it won’t go any higher. I will try that tonight. Just don’t know if I can do it.

    Pottervirge, do you use it on a very high intensity too?

    Kind regards, all.

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  • By Jaishreema

    By the way I got mine from a man in Canada who sold it second hand on a Craigslist type of thing (and I’m in the US). You know how we get – so desperate for some relief from this pain – I was going to order it from Cefaly US when it first came out here but I couldn’t wait until the back order was cleared. I was very lucky to find it on a site and it works perfectly. I bought $200 worth of electrodes which should keep me comfortable for about a half a year. I am going through one in about l0 days.

    For those who have it and use it daily, how long do your electrodes last?

    I use it on the middle setting (Prevention) but mine has 3 settings. I like the Abortive setting too for relaxation and taking some of the edge off. But it does not disappear the headaches as I’ve hoped.

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    • By Howard Fites

      Jaishreema, I also use Tac Gel to extend the life of the electrodes. I bought a box of packages alcohol swabs to clean my skin each time I have a treatment. I find if I’m very careful and firmly replace the electrode on the plastic backing (no bubbles) and put it back in its original package and that inside an airtight package mine last about 20 days. I know it sounds anal but money matters these days.

      With the Tac Gel you can use it in two ways. You can remove the entire old stick ’em off the old electrode and replace with a new thin coating of Tac Gel only in those areas that had gel originally, not the center section. Leave it out for the day to air dry. If you use it right away you will have Tac Gel everywhere. You can also add a small amount of Tac Gel directly on the old gel. Use too much gel and it can make the pad very thick. This too must dry before you use. Tac Gel does tend to leave residue on your skin after.

      I use mine once a day before so I think the life of an electrode that Potteryvirge gets is about the same as I do.

      As for the pain thing. My understanding of the devise is that it “teaches” the nerve to be less sensitive over time so I’m making assumptions that the greater the pain the greater the insensitivity over time. Consider what I’ve done in the past, banging my head on walls and floors, hitting my head with the point of a pen, sticking my head on a bowl of ice for an hour this pain seems manageable. At least I have not yet taken an electric drill to my head… but it’s crossed my mind. 🙂

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  • By Sharon

    Jaishreema, I always use the middle setting…. The electrodes last about 10 days but I am getting an additional 5 days of use out of mine by using Tac Gel. I only use the gel when the “stick ’em” wears off of the electrode. You can order the gel from Amazon for about $7.00 a tube. You only need a tiny drop of the gel for the connection so one tube should last more than a year and give you about 50% more use out of the electrodes. Do not smear the gel on it or the connection won’t work. After about 15 days it’s time to toss the electrode. But remember, I am using mine twice a day so that’s 30 uses from one electrode. … As an FYI, I just saw 2 Cefaly’s for sale on Ebay. Somehow I got mine off Amazon. There was one for sale coming from Australia. It was $375 which is about $75- more than ordering through the company, but this way I didn’t need a prescription. The one for sale on Ebay is also from Australia.

    Wishing more people good luck with the Cefaly!

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  • By Sharon

    Last week I posted a 5 minute YouTube about my 90 day experience with the Cefaly Headband. If you are interested, here is the link:

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  • By Jaishreema

    Thank you Pottervirge and Hfites! Very clear and specific instructions on the tac gel. I appreciated them. I tried the gel a few times but it was kind of gooky…so now i know to air dry it before I use it and how to spread it. Thank you very very much.

    Nice video, Potteryvirge…thank you.

    Another question. I just had a round of botox injections. Have any of you used the Cefaly after the botox treatment? I’m afraid it might displace the botox before it settles into the muscle or interfere with the botox. Last time I had botox 3 months ago I used the Cefaly right away and throughout…and my results from Botox that time were not as good as the first set of injections when I didn’t have the Cefaly yet.

    Anyone know or have experience with both Botox and Cefaly? Thanks so much, all. Have a good day.

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    • By Howard Fites

      Jaishreema,

      I’ve never used the Botox treatment. Since I started with the Cefaly I have tried to use no other treatments but I have had days when I had to go back to the Imitrex. As with Potteryvirge I have had very good results but still have a problem with weather change.

      I’d say ask your Doctor about the Botox/Cefaly combination but I know how ridged some Doctors can be about treatments they didn’t prescribe.

      Best of luck!

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  • By Jaishreema

    Hfites, thank you again! Yes, weather change is the worst for me, too. This time in Florida is a killer really and this year has been the worst ever. Just torture for migraines. Where do you live?

    I asked my neuro who prescribed both Botox and Cefaly. He did not know since he’s never had a patient use both or read anything about it in studies. I just get nervous with the Botox. Round 1 was a little better than Round 2 for me (now this is my 3rd round). I had had a migraine free week after the 3rd week of round 2, and then did acupuncture and laid very heavily on my face and my neck really hurt during the treatment. The effects of Botox completely wore off after that!!! It was weird. I had terrible migraines the last two months during that round, following the laying down on the acupunture table on my face. So this time, I’m trying not to do anything like that and since I just had them done on Monday, I am even trying not to do alot of ice or the Cefaly in the beginning. I read that exercise, rubbing, any manipulation in the beginning of injections is not good cause it could dislodge the botox…so I am trying to keep anything from interfering with it. I might forgo the Cefaly for a while – just to see – cause last time I really did not do well on the Botox.

    But I will miss the Cefaly since it feels so good. Maybe in a few weeks I’ll do it again if I can wait that long! 🙂

    Have a good day!

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    • By Howard Fites

      Jaishreema,

      I live in Southern California the Inland Empire area in Redlands. It’s close to Palm Springs. Weather here is hot and dry most days but we do get sudden changes where it will be 105 on day and drop to 75 the next and be overcast. We also get Santa Anna winds out of the desert which are a killer. Humidity kills me and I know Florida can be humid. One of my worst experiences was a cruise I took and the change from air conditioning to very humid outdoors made my head burst. I had to get emergency services on the ship.

      Your treatments are much more complex then mine. I’m a one thing at a time kind of person. I had a chance to use Botox but the expense was just too much for me and I have been without insurance for most of my adult life so I’ve done treatments on the cheap.

      I sounds like you are doing all the right things and you can always take up the Cefaly again if you feel the need to move from Botox if it’s not helping.

      I wish you the best.

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  • By Jaishreema

    Yes, I’m so happy for both of you, Pottervirge and Hfites. A victory is amazing. Any victory here – going down to 5-7 a month is a very positive thing, Hfites.

    I too am overusing the Imitrex and Maxalt generics. I look forward to the day I can only take them a few times a month or none at all.

    Blessings to you both! Here’s to a migraine free day for all.

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    • By Howard Fites

      Thank you for the encouragement, it’s much appreciated. It’s hard to talk Migraines in a world that doesn’t understand. Good luck with your success and hope you do attain a drug free, Migraine free life. I think of it as being human again.

      Best wishes, Howard

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  • By Sharon

    Good morning from 79 day migraine free me. I have never been on any discussion boards re. my migraines. These posts make me feel more “normal.” Especially to see how many others, like me, suffer from weather changes. I thought I was alone.

    My migraines feel like shards of glass, razor blades and nails have been dumped into my head and shook up. I’ve tired everything; acupuncture, biofeedback, diet, and every horrible daily medication you can imagine. I’ve been in countless migraine studies at USF looking for the magic bullet to this.

    I still am in disbelief that this relief has actually happened to me in my lifetime. I almost don’t know what to do with myself. I’m use to losing almost half of my life each month and now I get 30 days just like everybody else.

    I don’t know if it makes a difference, but I am using my Cefaly twice a day; when I first wake up and last thing before I go to sleep. At this point, I’m not willing to do a once a day study to see if it still works. I’m not changing anything!

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  • By Delaney

    Hi everyone,
    Jaishreema, I have regular Botox injections. I waited until two days after the injections to use the Cefaly, partly because my forehead bruises after the injections and is already uncomfortable, and partly because I didn’t want to mess with the Botox before it had “settled”. It seems to work well for me that way.

    I’m using it at least once a day on the “preventative” setting (mine is the Canadian device) and then use it several times in a row during a migraine on the “treatment” setting. It felt uncomfortable at the beginning but within a week I had acclimated to it and now it just feels tingly… and like others, I’ve fallen asleep from being so relaxed.

    I have ordered some electrode gel as recommended by others on the forum but haven’t had to use it yet. I keep the electrode in a small Ziploc bag with one of the cleansing wipes – in the foil pouch it came in but with the top torn off – and this has kept the electrode moist and usable for coming up on a month now.

    The manual is poorly translated and the customer service is sub-par at best (no notification of shipping, a shrug when I wrote about the manual) but the device itself works, so that is all I care about 🙂

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  • By paradice15

    I am so pleased to have found this forum, after years of having researched migraines and treatments. I had a cervical epidural which resulted in a spinal leak, throwing a blood clot into my brain. The trauma resulted in 6 years of opiates and major pain meds, leading to rebound headaches then traumatic migraines. I can relate to all your stories – this pain is intense, and no fun!

    First I would like to thank Potteryvirge for her video – that convinced me the Cefaly device I purchased 3 weeks ago could be the answer to my prayers. After religiously using it 3 times a day, for 19 days now, I am so excited to say my chronic daily migraines have been reduced to a minimum! Rather than 2 or 3 major episodes a day, I now have a weak one or two each day, and those last only an hour or so at 50% severity!!

    Does anyone know where I can purchase additional electrodes? Roxon informed me they no longer sell to the USA, and Cefaly.us website is down.

    Good luck to everyone, and I pray you all get the relief you need from this disabling pain.
    Regards,
    Marianne

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  • By Leslie

    Unfortunately after using the Cefaly headband for a couple of months I’ve had no success with it. Does anyone know how and if I can sale it? I would much rather someone else try it and hopefully have success with it, then it be gathering dust on my dresser.

    I have the original box it was mailed in, the case, directions, and some electrodes. Can it be sold??

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  • By paradice15

    Dear lmasher —

    I’m not sure if it can be sold, but I know before I bought mine I looked on EBay and there was one for sale. However, the Monitor noted it was not legal to sell on-line since it requires a prescription in the USA — but I didn’t see if it sold there or was taken off the selling list. Maybe there is a Canadian EBay?

    Good luck – sorry it didn’t work for you. My headaches have crept back up again, so I’ll reserve my decision about its effectiveness for awhile.

    Best wishes,
    Marianne

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  • By Perez Joseph

    Unfortunately the Cefaly did not work for me at all. I got one shortly after approval by FDA and paid for it out of pocket. My migraines are 24/7 at level 9 out of 10 on the pain scale. Due to Heart issues I cannot take any type of vasoconstrictor meds such as Imitrex. I’ve also tried Botox, acupuncture, facet injections, epidurals, chiropractic, massage, herbs, vitamins, restricted diet, and I keep a daily log of everything I do or eat and when, but these treatments have been unsuccessful also. As a side note Dr. Raskin of UCSF (an outside referred by my headache specialist) did say my case was the worst he’d seen (not to encouraging considering his reputation and over 50 years experience). So at this point I rely on a couple of pain pills which provide about 2 hours a day of level 8 pain (which believe it or not for me is a great relief). Any suggestions?

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  • By Sheila

    Hi, I hope thus blog is still running!
    I just purchased a Cefaly device after taking a horrid preventative for 8 months. The Cefaly seems to be working, however, I just can’t get the electrodes to stick. After a single use the weight of the device pulls the electrode off. I’m following all of the instructions…wiping my forehead, drying it, keeping the electrodes in an airtight container….but it just isn’t working. The manufacturers have sent me something called a reinforced electrode, with a stronger central strip. But this isn’t helping either. I am now using tape to hold the top edge of the electrode to my forehead!! I do have slightly oily skin naturally, and I’m wondering if this has anything to do with it?? Does anyone have any suggestions?
    Many thanks!

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    • By Delaney

      Sheila, why not lie down and relax while you are using the Cefaly? That way the weight of it is naturally centred on the electrode rather than pulling down.

      You said you are wiping your forehead, drying it, keeping the electrodes in an airtight container… what are you wiping your forehead with? I get good results with rubbing alcohol wipes (like you would use for an injection.) Also, try keeping an opened alcohol pad in the Ziploc or whatever you keep the electrode in. It will tend to dry up (and then not stick) if you just keep it by itself I find.

      Finally, the tac gel is a great investment. The electrode gel leaves your skin less sticky (more like an aloe vera gel) but you will need to use the Cefaly lying down with it as it makes the electrode slick.

      Good luck!

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  • By Sheila

    Thanks Howard. I’ve ordered some electrode gel. But I’m still confused as to why the electrode comes off on the first use. I can understand it becoming less sticky with repeated use, but not after a single use! Can’t see what I’m doing wrong. Have you come across this before?

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  • By Howard Fites

    I’ve had them loose stickiness far sooner then they say they will. I will get about five good adhesions before they start to loose it. I resorted to Neutrogena Clear Pore Oil-eliminating Astringent. This is the best product I’ve found to remove all the oil and it does help with the electrodes.

    I had very good luck with the Cefaly for most of a year and then it started to loose its’ effectiveness. I switched to injections to my head and neck. These have worked very well but I can only get them three times a year. When the injection starts to wear off I switch back to the Cefaly.

    Do you have very tense neck and shoulders? If so you might want to look into the injections. My injections are of Triamcinolone Acetone. Not a fun procedure but the relief for me is huge.

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  • By Sheila

    Thanks Howard, that’s really useful information. I’ve never heard of the injections, but I’m going to look into it.
    Have contacted the Cefaly customer service people in Belgium (I’m in the UK) several times about the electrode issue, but they really don’t seem interested in any issues concerning the use of the device and are very unsympathetic! It’s really very disappointing. According yo them, they don’t know of any user where the electrodes don’t work as long as they say they do. Ignorance is bliss I suppose! 🙁

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  • By Howard Fites

    Good luck Sheila. Migraines are a matter of try and try again until you find what works best for you. I’ve tried just about everything imaginable. Recent MRIs are showing a bone growth and signal abnormality in my neck which may be at the root of decades of migraines. Who knew? Hopefully your answer will be at the end of an easier journey.

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  • By Sheila

    Delaney, I will try the opened alcohol pad in the ziploc. Many thanks!

    Howard, now that the bone growth has been discovered, I hope something can be done about it.

    Thanks both!

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  • By paradice15

    Hi everyone —

    I purchased my Cefaly over a year ago, and unfortunately have had limited success with it as a preventative. However, during a migraine if I lie quietly with it on, I’ll get temporary relief. Always a positive!

    I understand your frustration with the electrodes, Sheila, as I experienced that as well. I contacted Cefaly customer service in Canada, and a very kind gentleman advised me to refrigerate my electrodes, and include an alcohol-soaked pad in the ziploc bag with it. It extended the life of my electrodes for months! A bonus is the wonderful relief of the cold electrode when you put it on.

    Cefaly should give these instructions in all its packaging, but then again it would decrease their sales of these expensive electrodes.

    I hope this helps all my fellow sufferers. Praying everyone has a pain-free day, and Happy Holidays!

    – Marianne

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  • By Sheila

    Thanks Marianne, that’s really good to hear someone else has had the same experience as Cefaly repeatedly told me they’ve never heard of this before! According to them, the electrodes last for 20 uses and I must be doing something wrong. But I’ve followed the instructions very carefully. I’ll put them in the fridge.

    It would be helpful if Cefaly had their own discussion forum for users. But again, I expect that’s not in their interest 😳

    Happy holidays to all fellow US migraine sufferers! Hope it’s a pain free one for you.

    Sheila

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  • By Lea M.

    Hi! New to this forum, but it have suffered from migraines for over 28 years with very little relief. I’m a bit of a rare case, as I have multiple (7) Hemangiomas in my brain and had a craniotomy to remove 1 that had bled out twice, causing hemorrhagic strokes.
    I also have 2 in the back of my right eye & one of them has bled out on me twice, but clotted itself off on its own. My neurologist has had me on multiple medications for all of these years, we have been doing Botox injections for 3 years, which helps a little bit.
    I get migraines about 15-20 days a month and can only take Tylenol #4 with Codeine for them because the other migraine meds that most people use thin the blood, which will only cause another stroke for me.
    I’m wondering if anyone on this forum has a Hemangioma (or more than one) and if the Cefaly device works for you?
    As many others have said, I get many of my migraines when the weather changes. I feel like a human barometer 😟

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