Hello there, I have a daughter, she is 19 years old, in Nov 2018 she suffered her first migraine attack (10 in scale of pain), before that she had normal headaches nothing bad.
After the first one, 2 days after, she had 2 more (also 10), and after that she became weak, very weak. She walk and speak very slow. Like I said to the doctor, If I did not know that what my daughter has is a complex migraine, I would think that what she has suffered is a stroke.
She has already had 2 MRI and 2 CT of the head, EMG, Spinal Tab, Carotid Duplex, EKG, Blood test, Hormone test, Urine test and all with negative results.
It is been almost 4 month since the first migraine attack and she is still weak, she use a walker to walk around the house and wheelchair if we need to go out. She has been seen by neurologists and psychiatric to help her with anxiety and depression.
They tried different medicine as a preventive, Topamax, Keppra and Lithium but all these three medicine had bad side effect on her, after a week of trying the medicine she became very weak that she even coudn’t walk and lost her speech for 2 or 3 days. After stop the medicine she recover to the same stage of weakness.
Right now she is trying Zonegram, but apparently it is doing nothing on her so far(11 days) because she is still having headaches every day (4 or 5 is scale of pain) she is still very sensitive to the light, smells and sound. I believe that is what is keeping her weak.
I don’t know how to help my daughter, sometimes she is crying because she is afraid of being disabled of her life. And apparently the doctors gave up on her case because they said they can’t find anything wrong with her. They said what she has is a complex migraine but I have my doubts, I have not been able to find information that tells me that a migraine puts a person in that state of weakness, specially for such a long of time.
Please if somebody had a similar experience, share with me information. We are waiting for her first appointment in Shands Hospital in Gainsville, Fl with a neurologist specialize in migraines. Unfortunately they are very busy and her appointment is in April. I would appreciate any help. Thank you.