Hi there, I’m new to this website/forum and I’m here to hopefully gain some advice from other migraine sufferers or parents who have kids with migraines. My daughter is 12 years old and has suffered migraines with aura on and off since she was 8. She would generally get 4 or 5 migraines every month or 2 on average which, although she hated them, they were definitely manageable. She was commenced on pizotifen 0.5mg morning and night. Before christmas last year she had a cluster of daily migraines for 9 days and was started on propranolol 10mgs 4x daily. We’ve tried cutting out and reintroducing the 4 c’s with no change. Since the beginning of the year things have deteriorated. She was having between 6-8 migraines a month and now the daily migraines have returned, we’re on day 14 at the moment. The pediatrician has increased her night time pizotifen to 1mg and I have requested a CT brain scan.
When she gets her migraines they are very sudden onset with loss of vision from her right eye, we give paracetamol and imigran at this point, and that’s her in a dark room for around 5 hours at a time.
She has missed nearly 3 weeks of school and is too frightened to leave the house in case she has an ‘episode’. She hasn’t seen friends and worries about her school work/social circle and is actually becoming quite down about it as am I. Just feel heart sorry for her and helpless.
If anyone has any advice/suggestions or similar problems please don’t hesitate to get in touch.x