I woke up with this headache two weeks ago today. I have waves of terrible pain in my temples and behind my eye, ranging from a 4 to a 9 on the “pain scale.” I’m 27 years old and otherwise healthy. I have no history of migraines.
I’ve been to the Jefferson University ER (Philadelphia) twice and was admitted to the hospital the second time for 3 days. They did a CT scan and MRI, and everything came back normal. They tried a ton of different drugs that had no effect on the headache: Reglan/Benadryl/toradol; imitrex; Fioricet; Percocet/Valium; compazine/toradol; Thorazine; IV ibuprofen.
I was released last Thursday, after the doctors “broke” the migraine using around-the-clock doses of a Benadryl/depakote/compazine cocktail (which basically just knocked me out for 3 days and left the pain at about a 3–i.e. I was too out of it to know which way was up). That was 4 days ago. They diagnosed me with an intractable migraine and sent me home with 6 pills each of compazine and naproxen, telling me that I “shouldn’t really need them because the worst was over.” Those meds are long gone and the headache has returned full force. I can’t sleep, I can’t go to work, and I don’t know what to do.
I have a follow-up appt with my GP tomorrow (who has been pretty much useless throughout this process), and I’m considering refusing to leave her office until she gets me an appt with a headache specialist asap. (The neurologist I saw at Jefferson–one of the guys that is actually listed on the national registry as a headache specialist–told me that the waiting list at the Jefferson headache clinic is about THREE MONTHS long. As I’m sure you can understand, I can’t wait 3 months.) The last thing I want to do is go back to the ER, but the pain is only getting worse. Suggestions?
On a related note, I have no idea what to tell my boss. I think he will try to make accommodations for me, but I have absolutely no idea what those accommodations should be. This headache could end tomorrow or next year, I just have no idea. Do I need to look into short-term disability? I’ve used all of my sick days over the last two weeks.
Finally, and I probably should have said this first , thank you for starting this website. I came across one of your forums about migraines and ER visits and felt so much better knowing that I wasn’t crazy for being confused by how they treated me. (I understand that I’m not having a heart attack, but, hey, I’m in a lot of pain over here…please try to help me!)
Any suggestions or advice would be greatly appreciated. Thank you!
(Did I mention that I can’t sleep? Does anyone else have this problem?? It’s currently 3:02 a.m.)