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Living with Migraine

Days when opening your eyes is a challenge

  • By Sheila

    This is my first time posting. I’ve lived with migraines for 20 years now, they have become chronic in the last 8 or so. I once ran into a guy who said he had debilitated migraines, they usually lasted 3 days or so, every six months. I remember thinking how lucky I thought he was. I was thinking of him today again as I sit here recovering from my fourth severe attack this month. So far according to my migraine journal I have had 4 days this month with no pain, 4 days I’ve spent in bed, and the rest where I function, but don’t enjoy anything.

    I have a wonderful husband and wonderful kids, and even a ridiculously understanding boss, but I can’t help feeling useless and I’m sure they all deserve better. I’m just tired of days when my biggest accomplishment seems to be just opening my eyes. I just want some relief and the ability to live a normal life. I wonder what it would be like to be pain free, fatigue free, anxiety free. I had my first treatment of botox yesterday and I would like nothing more than for it to work, but my hopes are not high, as nothing else has ever worked.

    Sorry for the rant, I was just hoping getting it out would help. I’m sure most of you understand where I’m at.

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  • By Jojiieme

    Hi Sheila!
    Did the Botox work for you?
    Have you had some good days?
    I know that feeling you describe, although my situation is different. I’m fortunate that I can work two days each week (a struggle but still, it’s work!) in a job I love, with people I love, in a field that challenges me. The distraction is exhausting but good.
    I have a couple of dear friends who are also living with chronic conditions. We FaceTime most days, or email, as if we were teenagers! Talk about politics or families or gardens, gripe about partners, very rarely confess our health fears…because we’re close.
    And family is family. They get it, or they don’t. They love YOU because you are special and unique. Garner your strength to give your best for them; they will protect you, nurture you, shield you and love you always, regardless.
    Hang in there!

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  • By Sheila

    Thanks for the reply, somehow I only saw it now and missed it back in December. So far botox is not working for me, I’m averaging about 15-20 days a month with migraine. Juggling a full time job and a family has become a challenge. I’m exhausted but sleep doesn’t help, I’ve lost interest in literally everything I once enjoyed.. My focus is gone. Most days I either don’t care about anything, am irritated by everything or can’t stop crying (which we all know is not great for migraines).

    I’ve seen both my neurologist and my GP this week to no avail. I feel like I’m holding it all together by a thread, and neither doctor really cares. I wonder if they will finally do something if I just let it all fall apart?

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