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Disability for migraines

  • By Deanna

    My daughter is 17, almost 18 and a senior in high school. We recently pulled her out of school. She missed five out of the first eight days of school. She is now doing online schooling, well at least trying. She is on her third migraine this week! She was finally referred to a neurologist. She goes in for an MRI next week. My question is, can I get her on disability and does anyone know how to go about doing it?

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  • By Kara

    I am currently on disability for my migraines, as well as fibromyalgia, bipolar disorder and depression. I have to admit that the process was grueling and a pain in the butt, but for me, it is the best solution since I suffer from migraines every single day of my life. You do have to go through the process of applying and filling out a TON of paperwork for the government. Don’t get discouraged. A major thing that might be able to help you is to go down to the social security office. Also! Please don’t get discouraged if your daughter gets turned down a time or two before finally being accepted. This is a “normal” process for the government to filter out those who really don’t need disability. I may have not put that correctly, but that is how it was described to me by my lawyers. Anyways, please keep us up to date on your progress and what your outcomes have been.

    Sincerely,
    Kara

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  • By KadKat

    A lawyer specializing in SSDI would be helpful in getting your daughter quallified faster than going it alone. I was able to get on disability the first try & I believe having a lawyer helped.

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  • By Sherlyn

    I finally was approved for Disability for my Migraines and Fibromyalgia. The process is long and and a lot of paper work. Make sure you ask and keep a copy and record of EVERY doctor visits, test & results, Medications with all Changes When and Whys. Daily records of your pain. I feel that getting an attorney was the best thing for me to do. The walked me thru all the hoops and loops and told me what I needed and how to get it. Good Luck.

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    • By Katie M. Golden Moderator

      @sherlyn,
      Congrats on getting disability! Sounds odd to say that, but it is really an accomplishment. All of your advice is exactly what I tell people who are starting this process.
      Best Wishes!
      -Katie
      Migraine.com Moderator

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  • By Iowapain

    I have been Fighting for disability for almost 4 years. About a year ago my mother passed away she was my only help finically right now I am lost I have lawyer and am in final stages but I have nothing left and come next month I don’t know how I am going to pay for anything,,,this process has left me broke like no other and ruined my credit and relationtship, on top of my migrains which are at least 4 a week on a good week…so I guess does anyone have any advice or any suggestions ….HELP!!!!!!!!!!!!!!!!

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  • By Katie M. Golden Moderator

    @iowapain,
    My heart goes out to you. I would ask your lawyer where and how you can get housing help in your area. I’m assuming you may not be able to stay where you are.

    Have you continuously been paying this lawyer to help you through the SSDI process? Do you trust this person? There are other services that don’t get paid unless your application is approved. I’m not sure how it works when you’re in the middle of the process, but I’m sure you could move all of it to someone else, if you felt it was necessary. I personally used the Advocator Group (advocator.com) to help me with the process. I never gave them a dime until my disability was approved and even then, it was just taken out of the back pay I was owed. Take a look and see if this type of service may help with your finances.

    Additionally, don’t be too proud to apply for other assistance programs. I’m assuming you don’t work and can’t because of your horrible Migraines? You may be eligible for Medicaid and Foodstamps. I’m sure this is not what you thought you’d have to do, but take any assistance you can until you can get back on your feet.

    Do you have a good doctor that you go to and trust? Maybe your doctor could write a letter for your SSDI case and see you on a payment plan. There are also prescription savings plans that can reduce the cost of your medication. Walgreen’s offers this (I’ve used it) and this website offers great information on how to get meds the cheapest https://www.pparx.org/prescription_assistance_programs/savings_cards

    Please let us know if you have additional questions. It would help to know a little bit more about your living situation and job status. I hope we can help!
    -Katie
    Migraine.com Moderator

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    • By Constance Boone

      I’m still fighting, too! I don’t know how things have turned out for you! I can relate to your frustration. It’s been 3 for me. My disability is waiting to be heard before the Appeals Committee. I have an attorney, and she was floored with the written denial I had, because in the hearing they even said there was no job I could hold. They ignored my neurologist’s letter and took the State’s dr who saw me for 10 minutes. Anyway, the Attorney was so angry at the written denial and filed another appeal. I’m still waiting. I’ve been told to have an attorney. I didn’t see if you had one or not. They take a huge chunk of your money, but it’s worth it in the long run. Good luck, and God Bless!

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  • By Iowapain

    well I got a letter today refusing me of disability…I am at a total loss right now….this is after my neurologist stated that with the frequency and severity of my migrains I would not be able to hold down a full time job…I have been figting with ssi now for 4 years…it has destroyed my credit and any kind of relationship I have had …I don’t know what to do at this point…unfortanatly I live in a state where our govener does not believe in mental health so has cut all funding to it ….I am at my wits end …sorry kinda rambling a bit but….I don’t know what else I have to do to show these people that my illness is real and is diabilitating…..again sorry for the rant

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  • By jns192 Moderator

    Iowapain,
    I am so sorry to hear that you received a letter refusing disability. No need to apologize for ranting- that is what we are here for! I understand that applying for SSI can be a tedious and lengthy process. However, several members have had success after several applications. If you haven’t already, feel free to check out this article on common myths about applying for SSD benefits: https://migraine.com/blog/common-myths-about-applying-for-social-security-disability-benefits/
    In addition to the feedback I hope you get here, have you asked your doctor what s/he suggest regarding the situation? Are you able to appeal the rejection?

    Wishing you the best of luck with pursuing SSD- we would love to hear back from you and are here to support you always.

    Best,
    Jillian (Migraine.com Team)

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