I’ve been around the block a few times with doctors, mostly neurologists, about preventative treatment for my headaches. As you can imagine, I’ve been on so many meds in 44 years, I can’t remember them all. Some I think I may have tried, but I’m not really sure.
What really gets me down is that when you tell a doctor you’ve tried that before, and you don’t want to try it again, they persist until you agree. There are whole classes of meds out there I’ve never been on before, why can’t we try one of those?
I was on one drug for over a decade, getting very bad side effects from (asthma and Raynauds), and my doctor said it’s probably helping my headaches so I should stay on it. It wasn’t helping them at all, I was in the ER at least once a month, still having over 15 migraine days per month and chronic daily headaches as well.
When you change doctors, that first visit is usually very expensive, so its not financially prudent to change docs all the time. So how do you get them to listen to you about your treatment? I don’t want to keep taking the same old meds I’ve already tried. It just seems fruitless. I’ve been on the same combination of drugs now since last September, slowly increasing the dosages until the max dose was reached in December. In March I was in the office twice in 2 weeks for rescue treatment. I’m still having daily migraines which get worse with weather changes. Has this been a fair trial on this med regime to say I want a change? I do have an appointment at the Jefferson Clinic in October, so I’m hoping for some more aggressive, or at least original, treatment from them.
Thanks for this website, it is tremendously helpful, informative, educative, and comforting.