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Does it EVER let up?

  • By Cindy

    Sorry, I am new to talking about this to anyone besidees the neuro… I have had this migraine for 2 years and have had nose bleeds to go with it now for 2 weeks.. The doctor just said, you’ll be fine and gave me more meds.. I am so tired of meds.. Nothing is helping.. I have tried everything.. Can someone please help? I am always trying to cover up the pain and it doesn’t work…My youngest is 3 going to be 4 on the 1st and I just hope that I am able to hold the signs of me wanting to pull my hair out because it hurts so bad until the guests have gone.. I have a senior in high school who is in the marching band, it kills me to be there but I go and watch her perform anyway.. How do I get rid of the blurred vision, double vision, or not being able to see? Something has got to give.. Thanks for listening.. I hope that someone can give me an answer…

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  • By merrie

    Hi,
    I am sorry you are going through such a tough time. Is your Dr a migraine specialist or just a Neuro? There is nothing wrong with neuros but they don’t necessarily have the right tools to help with chronic or intractable migraines. What meds have you tried? Are you on preventative? I know it’s frustrating. I was in the same mental place as you a few months ago. I even had to quit my job of 15 years because I could no longer perform up to company standards. However, with the help of a migraine,specialist, and some creative thinking, I feel like my life is slowly getting back on track. It’s not perfect, and I doubt I will ever be migraine free, but at least I am functioning again. I am able to get out of bed, and cook dinner occasionally, go for a visit with family etc. Let us know more specifically where you are in terms of treatment.
    Mer

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  • By Nancy Harris Bonk Moderator

    Hi momma2009,

    I’m so sorry you are in such pain right now. Nose bleeds are not a ‘typical’ symptom with migraine attacks but if our blood pressure increases, they can occur. I’m curious about what kind of medication the doctor gave you – was it to help the nose bleeds or migraine?

    Seeing as you’ve had two years worth of migraine pain and haven’t seen any improvement, may I suggest it’s time to see another doctor – an expert in migraine and headache disorders. Neurologists may be fine doctors but have a hard time being experts in any one area because they treat so many different conditions. A migraine specialist on the other hand, is a doctor who is a board certified expert in headache medicine. Let me share information with you on what’s so different about migraine specialists in this link; https://migraine.com/blog/how-are-migraine-specialists-different/ and when you’d like to find one, that information is in this link; https://migraine.com/blog/looking-for-a-migraine-specialist/.

    A migraine specialist should be able to help. Does the blurry and double vision you experience only happen when you have a migraine attack? If you haven’t had your eyes examined recently it may be time to see an ophthalmologist to make sure your vision is OK.

    One more thing – being in pain on a daily basis is frustrating and exhausting. Do you by any chance take something every day to help relieve this pain? A big problem many of us run into occurs when we take migraine abortive medications and/or pain medications, whether they are over-the-counter or prescription, more than two to three days a week. This is called medication overuse headache or moh which was formerly called rebound. If we have moh, our migraines will be more difficult to treat and we can end up in a daily cycle of pain that is hard to break. Here is information on moh; https://migraine.com/blog/help-how-can-i-not-overuse-migraine-medications/.

    I realize I gave you a lot of information to go over so I’ll stop for now. I hope you find this information helpful.

    Nancy

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