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Medications & Prescription Treatment

Effectiveness of Migraine Treatment

  • By Chd

    I am inquiring on behalf of my sister who has had continuous migraines for the past 25 years. They range from painful to debilitating and more often toward the debilitating side of the scale. She has seen more headache specialists than we can count not to mention family practice physicians.

    Is there a recognized ‘world class’ center that truly specializes in the treating migraine? Or can you recommend a specialist who is a potential source for people who have chronic migraine and seem to be treatment resistant.

    I have recently had brain surgery and my condition is cakewalk compared to what she goes through every day…..any help would be greatly appreciated.

    Thanks

    Chad

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  • By Ellen Schnakenberg

    chd – thank you so much for your concern for your sister. Most people don’t understand that brain surgery can be much easier than something as “common” as Migraine. You voiced that – thank you so much!

    To address your question, matching physicians with patients is a hit or miss proposition. Not all matches work – plain and simple. As hard as it is, finding the right physician match for someone who is hard to treat like your sister and myself can be problematic and very, very discouraging. The trick with Migraine is knowing that the key is patience and perseverance.

    It might help to know where you are located. If you wish you can message me here.

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  • By Otter MacAilein

    I’ve been seeing an excellent headache specialist for about a year and a half. We’ve tried numerous different treatments all with little or no effect. I can’t afford some of the remaining options, like a trip to a headache clinic, or chiropractic care. So my question to anyone who has been in this position is what do you do when you don’t know what to do next?

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  • By Ellen Schnakenberg

    ottermacailein – It would take over 25 years just to try all the available single medication treatments, and this doesn’t include non-drug therapies and treatments of which there are many. So my suggestion is always to hang in there and don’t give up. A good specialist won’t give up on you if you don’t give up on them… or yourself. Having Migraine requires an immense amount of patience and fortitude. It is NOT for the faint of heart.

    Have you had a frank discussion with your specialist about how things have gone with him/her so far? That might be the very best place to start.

    Sending lots of good thoughts your way. You are certainly not alone. I’ve been chronic myself since the mid 1990’s and have still to find something that would give me much of my life back. I’m still trying though… Can’t give up!

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  • By Otter MacAilein

    Thank you for the encouragement Ellen. When it comes down to it, we can always find the fortitude to keep on moving forward. It just doesn’t feel that way in the moment.

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  • By bluebird

    Ellen,

    Your posts have consistently been richly informative and helpful on those days when I have felt worn down to the bone and the marrow felt like it was drying up.
    You have a gift for encouragement.
    I have CDM and was a friend and colleague of Dr. Fred Sheftell who saved my life by providing the diagnosis of Migraine to what was a confounding set of symptoms…decades ago.

    But after being a compliant puppy and having the good fortune to have gifted specialists to work with, I am still struggling to find enough relief to rebuild a reliable and predictable life style. My genetic loading was worsened by an episode of viral meningitis.

    I am now facing yet another change in RX with trepidation. The list of RX I have taken and the combinations too long to mention…all offering some, but not enough benefit to outweigh side effect, or more importantly …reduce significantly the impact of CDM!

    I support your continued efforts in your own journey toward wellness and the generous way in which your experiences ripple out into the world we share as Migraineurs.

    And I support the work of Migraine.com which has been there for me whenever I have needed to reach out and not to feel alone. The work of getting more politicians to pay attention to the need for research is also needed. We need more creative new approaches and that requires research funding! Thank you.

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  • By Ellen Schnakenberg

    ottermacailein – You’re so very right.

    I hope you get a chance to have a really good discussion with your doctor. There are many options out there, and my hope is that you will find one to help you sooner than later.

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  • By Ellen Schnakenberg

    andreak – You are so very lucky to have had such an amazing specialist and man on your side. I never got the chance to meet Dr Sheftell, and it’s strange, but I feel that I miss him even though I never actually met him. I’ve met his wife, and listen as doctors talk about him every day of conferences. His loss was terrible for many reasons…

    Thank you so much for your encouragement! Somehow you knew the perfect time to post this, and I want you to know that it is greatly appreciated <3

    I really want to encourage you to hang in there. There are some amazing new treatments coming down the pipeline, and those of us who haven’t found anything that can really give us our lives back, need to keep trying. I really think that the key to getting better often is in not giving up. I personally try to look at all the struggles as an investment in time that will pay off when I least expect it. We have no choice right now but to live lives with pain, but we do have the choice HOW we live those lives – yes? 🙂

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