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CGRPs (calcitonin-gene-related peptide)

Emgality: Have you tried it? Share your experience here.

  • By Dana

    I switched to Emgality after 3 months on Aimovig with no relief and the side effects everyone is talking about……fatigue and extreme muscle pain. when I told my doctor about it, she said these side effects were now widely known amongst her and her colleages (sp?). So I took the loading dose of 240 mg (2 120mg injections) on Nov. 7, just two days ago and at this point all I can really report is this
    The shots hurt like hell….just momentarily , it’s fine after the injection is complete (we have migraines, we can suck it up, right?)
    About two hours after the injection I had an intense wave of sleepiness come over me (like when you taken a pain killer), it was almost bedtime so I went to bed (but regardless of what time it was I would have had to lay down). when I woke up I had no lingering feelings of fatigue and have had none since. And at this point, no reported muscle pain.
    I have been in a vicious cycle since the beginning of October and it’s only been two days, so not much relief to speak of, but I certainly didn’t wake up expecting to be cured.
    I will continue to post my progress, wish me luck!!!!!!
    Dana

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    • By Dana

      5days out and still no relief. I am easily at an 8. my eye is throbbing goes around to the base of my skull, my neck and shoulder hurt, my jaw hurts, my teeth hurt, my nose hurts in a sense that I got punched, my ear even hurts. And I get terrible hay fever symptoms so my nose is running, my eyes are tearing up, I’m sneezing. I could only find one other set of reviews for Emgality and one person said they had relief in 2 days. Ugh. Here we go again

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    • By Anonymous

      Dana curious if you are having. Any success yet with Engality. Looking to switch after 5 months with Aimovig and no effect on daily migraines.

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    • By Dana

      @wetm
      Unfortunately, no. However I have been in a horrible cycle since the beginning of October and my neurologist reminded me these drugs are preventative (which is weird, because the success stories “had relief within days”). I’m actually being admitted to the Thomas Jefferson Headache Clinic tomorrow for their Lidocaine Infusion to try to break the cycle in hopes that after that the Emgality will work to prevent migraines in the future. I should be there approximately 5 days and them am due for my next shot 12/7. Now I’ve been to Jefferson before and left Headache free but was unable to tolerate the preventive they gave me at that time and now less than 6 months later I’m going back. I’m hopeful, but skeptical. But I will keep you posted on my progress. I’d like to know a little about your migraine history because I think that’s important. But I say give it a whirl, what do you have to lose, really? And bonus NO side effects with the Emgality.
      Talk soon
      Dana

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