I’ve had migraine my whole life (age 3+) and my two most reliable triggers are fluorescent/flickering light, and dropping barometric pressure (thunderstorms.). We have had a storm nearly every day for the past 3 weeks and I have had a migraine all but 3 days of the past 3 weeks.
I’m only working part-time at the moment and mostly from home, but I’m still behind in my work and feeling stressed about it, which of course is no good for the migraine. Today I woke up at 7:00 am with a migraine and took two Dexedrine to try and launch myself out of bed because I can’t afford to lose the time. When I woke up at 2:30 pm it was obvious that strategy didn’t work. I took an Amerge, made it to the office to pick up some files and then managed to drive home again while my mkigraine symptoms progressed. I don’t feel up to working tonight and usually try to go to bed hoping that will help the migraine go away, rather than powering through it… but I’m concerned that it will be back again tomorrow.
I know about MOH and am doing my best to avoid it, but don’t really have a plan for what to take when I get persistent migraines. I’ve tried the preventatives and am on Botox, which helps, and have Amerge, Zomig, Tramadol and Percoset as well as injectable Gravol for attacks.
I have an appointment later this month with my neurologist and I feel like we have to go after this more aggressively because I literally can’t afford to live on disability (it would be through the government, I don’t have any employer benefits) and am alone. I’m in Canada so we don’t have migraine clinics like I’ve read about in the US, and I feel like my neurologist’s response will be “you’re managing to work… What more do you want?” But I am desperate. I’d do anything – nerve surgery or whatever – to get some relief. I find that massage and chiropractic help somewhat but don’t have any coverage, and the stress of paying for them almost cancels out the relief I get.
How can I make my neurologist understand that these are at an intolerable level? What should I be asking for? Please help!