50 Years & Older Living With Migraine

Fear of dying

  • By tedone

    Hello. New to the community, but unfortunately not migraines. I’ve suffered for years and now live in constant fear that I will die soon from these attacks. I am on day three and alothough the severe pain has ended, I’m left with the follow up junk- light headed, metal taste in my mouth, numb tongue, sleepiness…. Anyways, been doing a lot of reading lately on how migraines sufferers die more frequently from stroke or cardiac related issues. I am literally in a place where I am afraid to go to sleep at night for fear of not waking up. If I am just watching tv i fear suddenly an anourism will take me or my heart will stop.
    Does anyone else struggle with this? Is irrational fear another symptom of this god-awful curse??

  • By tinaka

    I am going through something myself. I am not sure if it was caused by the migraines or it caused the migraines. It’s a existential crises, or sounds like it. I find that when this happens guided meditation helps. You can find some good guided meditations on you tube. I know meditation sounds like a pat answer but it can at least relax you. BUT if it makes you feel any better the feeling goes away when I get better (after the postdrome phase) so possibly it is a symptom. Your brain goes through some weird stuff with a migraine.

    • By tedone

      Thank you for your input. I 100% agree with you that the brain undergoes some really weird stuff during this. That being said, it is helpful to have found this forum to talk with others who REALLY get it! My husband tries to understand , but how can one truly empathize unless they have experienced this hell for themselves?
      I wish you luck in your journey.

    • By Nancy Harris Bonk Moderator

      Hi tedone,

      Welcome to the discussion forum – we’re glad you’ve found us!!

      People who have migraine with aura are at an increased risk of stroke, and this article has excellent information;

      I understand how all consuming worrying about migraine disease and stroke can be, but concentrating on it doesn’t do us any good. I try and focus on migraine disease management and prevention, and healthy lifestyle choices – this way I feel like I am in control of it, not the other way around!!

      I hope that makes sense,