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50 Years & Older Living With Migraine

Fear of dying

  • By tedone

    Hello. New to the community, but unfortunately not migraines. I’ve suffered for years and now live in constant fear that I will die soon from these attacks. I am on day three and alothough the severe pain has ended, I’m left with the follow up junk- light headed, metal taste in my mouth, numb tongue, sleepiness…. Anyways, been doing a lot of reading lately on how migraines sufferers die more frequently from stroke or cardiac related issues. I am literally in a place where I am afraid to go to sleep at night for fear of not waking up. If I am just watching tv i fear suddenly an anourism will take me or my heart will stop.
    Does anyone else struggle with this? Is irrational fear another symptom of this god-awful curse??

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  • By tinaka

    I am going through something myself. I am not sure if it was caused by the migraines or it caused the migraines. It’s a existential crises, or sounds like it. I find that when this happens guided meditation helps. You can find some good guided meditations on you tube. I know meditation sounds like a pat answer but it can at least relax you. BUT if it makes you feel any better the feeling goes away when I get better (after the postdrome phase) so possibly it is a symptom. Your brain goes through some weird stuff with a migraine.

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    • By tedone

      Thank you for your input. I 100% agree with you that the brain undergoes some really weird stuff during this. That being said, it is helpful to have found this forum to talk with others who REALLY get it! My husband tries to understand , but how can one truly empathize unless they have experienced this hell for themselves?
      I wish you luck in your journey.

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    • By Nancy Harris Bonk Moderator

      Hi tedone,

      Welcome to the Migraine.com discussion forum – we’re glad you’ve found us!!

      People who have migraine with aura are at an increased risk of stroke, and this article has excellent information; https://migraine.com/blog/migraine-aura-medication-stroke-assessing-risk/.

      I understand how all consuming worrying about migraine disease and stroke can be, but concentrating on it doesn’t do us any good. I try and focus on migraine disease management and prevention, and healthy lifestyle choices – this way I feel like I am in control of it, not the other way around!!

      I hope that makes sense,
      Nancy

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    • By Marci Kallick Moderator

      Hi @tinaka ! Thank you for offering your support to a fellow community member 🙂 I am 100% in agreement with you that meditation can help ease the stress and pain we experience as migraine sufferers. What online apps have you found helpful? I have the Calm app and can use it for both guided and timed meditation. I also just started Tapping (EFT) and find it interesting in how it can interrupt the thoughts/worry/anxiety…and even pain! (I don’t recommend tapping during an attack though) Glad to hear meditation has been helpful for you. ~Marci (Migraine.com)

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  • By WeaverGrace

    tedone, I think that I know what you’re experiencing. A well-meaning friend shared a book that explained the experience of a stroke, and it described my experience. My dr. ordered an MRI to look for signs of a stroke, and the result relieved me of that fear. Now I know that my migraines closely resemble some strokes. My migraine symptoms are so clear to my husband and me, I feel sure that we will know the difference if I ever experience a stroke.

    I also recognize in your message the power of migraines over our emotions. Am I correct in understanding that you are more inclined to feel afraid during a certain phase of your migraine? I have come to discover that I experience severe depression at the beginning of my postdrome. I am learning to remember this, and accept it as a good sign that the migraine is coming to an end, and I will feel better soon.

    I agree with tinaka that meditation helps. I have been meditating for decades. I used to use meditation to help me escape from my unbearable experiences, and now I’m using it to feel my body’s symptoms. Like Marci, I have been using EFT, and it is great at helping me to feel the pain etc., and to discover fantastic metaphors. I use EFT during migraines by simply imagining that I am doing the tapping, since I am not capable of actually doing the tapping then.

    I send hope for comfort.

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  • By Nancy Harris Bonk Moderator

    Hi WeaverGrace,

    Thank you for sharing your tips and encouragement with us. It’s refreshing to see all the support for one another. This is a wonderful community!

    Nancy

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