My 12 year old daughter has been suffering from migraines for the past 3 years. On October 7, 2014,she started with what we thought was a regular migraine. Because no home remedies, ie, preventative and maintenence prescription medications, were working, we went to the emergency room for a migraine cocktail. We left after the cocktail with my daughter mumbling that her headache was a zero. However, the next morning she immediately had a migraine. After 2 more trips to the er for more cocktails and supposedly zero pain after the cocktail only to wake up with the same pain level, I asked whether or not my daughter was suffering from the same migraine that started on Oct. 7. I was told that because she left the er saying her migraine was gone, it was a new migraine. I talked to her neurologist who put her on imitrex for immediately when her migraine started. W tried that a couple of times, even to increasing the dose from 50mg to 100mg twice in 4 hours. Still nothing was helping this migraine. Finally, at the end of October after being in the er 4 times in a week, I demanded that my daughter be admitted so that she could be monitored after the cocktail to see what happened with her migraine. After 5 days in the children’s hospital, being treated with constant cocktails, depekote, steroids, and IV magnezium, we were basically told “this is all we can do for you, go home” even though no progress was made in reducing my daughter’s migraine pain. The doctors went from being concerned about my daughter’s migraine pain number to saying the number doesn’t really matter because it was all relative. So they wanted to focus on functionality. I explained that I was not overly concerned with functionality since my daughter had been functioning perfectly well for the whole month of October. We were still told there was nothing more they would do except to refer her to behavioural and psychological support because she MUST be depressed or stressed out which was causing the migraine. Before the hospitalization I knew my daughter was not depressed or stressed, so was not happy with this diagnosis. But now, after being told that nothing could help her, she is fatalistic about her pain and fights in trying anything because she’s “just going to live with this pain the rest of her life.”
We met with a “headache specialist” who said there is nothing to do but wait out the headache and to see her back in 4 months, and to meet with the neurology behavioral specialist.
Since then my daughter’s pain level has increased, with the pain moving into her eye. We again tried a cocktail which did nothing. We contacted the “headache specialist” and was again told we had to “wait out” this migraine.
A 2nd MRI/MRA was done before the hospitalization but was suboptimal due to my daughter’s braces. A previous MRI/mra had shown an abnormal configuration of being which were determined not to be a problem. However, the new MRI/MRA could not see these veins because of the braces but no one seems to want to do a new scan without the braces.
I feel abandoned by the doctors and specialists. I cannot believe that my 12 year old daughter has to be in constant pain. As of this week, my daughter has been in pain for 2 months straight. She is missing a lot of school because of this migraine.
Is there anyone who has had this kind of experience? Are there any other treatments that can be tried? Can anyone help?