I’ve suffered from migraines since 1997. In or around 2000 they went chronic (3-5 days of migraine a week.) this past April they went constant. My abortives quit working. I had to go out on disability from work. I’m bi-polar2. In the past I have tried preventatives, to no avail, all sorts of anti seizure drugs, anti-depressants and numerous abortives.
Through this round I have tried the mayo clinic, massage, physical therapy, pain management, MRI, MRA, MR vena, psychotherapy, and biofeedback.
No tests have showed anything irregular. Where I so wished they would come back and say “ah, we found this wrong with you” so I don’t continue to feel like a loser. When people can’t see the reason for your pain, they don’t understand it, and eventually think you’re faking it.
I want to go back to work. I want to not be in pain. I want my life back.
I’m sorry are seeing an increase in migraine frequency. It’s not uncommon to have our migraine patterns change and it’s good to hear you’re working on this with your doctors. You aren’t a “loser”, rather someone who has a genetic neurological disorder along with 38 million other people. There is no imaging or blood test to diagnose migraine, so most of the time our tests come back normal, which is a good thing. You are correct, many times people don’t, can’t or are simply ignorant about migraine.
An important thing about migraine is trigger identification and management and I’m not sure doctors spend enough time on this during our visits. Some people are triggered by certain foods, lights, odors, changes in the barometric pressure, dehydration, changes in sleeping patterns and many others. A few of my triggers are becoming dehydrated, changes in my sleep patterns, raw onions, red wine and others I can’t think of at the momen! Let me share information with you on triggers; https://migraine.com/blog/migraine-management-essential-trigger-management/.