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Living with Migraine

Get Involved

  • By admin

    Welcome to the Get Involved Forum

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  • By Ellen Schnakenberg

    Sharon, I wish I lived closer. As it is I’ve been considering doing the same thing here as this is a big medical area, yet has very few support groups of any kind. What is the name of your facebook group – I’ll be sure and join it!!!

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  • By Sharon

    Guess what, Ellen! I have started a support group in St. Louis! Go to:
    http://www.meetup.com/St-Louis-Migraine-Support-Network/
    You are welcome to join from out of town. We have 12 members so far, and are growing fast. Our first meetup will be on April 27th, but I will also be setting up a posting board like this one where people can contribute without leaving home. I’m so excited!
    I could actually use some help as far as conducting a support meetup, though. There must be a protocol, and I’ve never done this before. Any ideas??

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  • By Diana-Lee

    That’s so wonderful! We have a nice group in the greater Kansas City area, but I’m terrible about getting to the meetings. Trying to do better.

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  • By Sharon

    I understand, Diana. The thing about Migraine support groups is, the time we need each other the most is the time we have the most trouble going to meetings. That’s why I’m going to suggest that members bring a support person. Do you have someone you can count on to get you there?

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  • By melissadwyer13

    I’m trying to find a support group.. I can’t find one around me.. does anyone know a good online one?

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  • By Krista

    Wish we had a group here in CA. That would be awesome!

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  • By Ellen Schnakenberg

    Krista, I see the NHF has 2 groups in California! I hope you can find one close enough to you to be helpful. Either way, do let us know what you decide 🙂

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  • By Linda

    I am Very curious to see how Botox is still working for most of you with long term doseage.

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  • By Linda

    I also would be intrested in a group around my area… Athens,Alabama. I feel very alone and isolated here!

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