Forums


Living with Migraine

Going on disability

  • By GSD

    At the urging of my neuro, I’m going to have to quit my job (after 20+ yrs, looks like the meds are affecting my liver values and the only way to try to decrease the amount of painkillers I take is to get away from the stress and noise of my job). From what I can tell, it can take a year to get approved for SSDI. That’s a long time to go without any income (I’m single so there’s no spouse/significant other to rely on). I live in a state which requires employers provide 26 weeks of disability (I have no idea what’s even involved in applying for this). I’m not sure if I’m supposed to go on that first, then once the 26 weeks are over, apply for SSDI? Or, do I start the SSDI paperwork immediately, even though I’d be getting disability payments from my employer? I tried to contact two disability law firms near me, but neither got back to me. I’m thinking it’s because I’m still currently working. I’d appreciate any info – I’m lost. Thanks!

    Reply Created with Sketch. reply
  • By Nancy Harris Bonk Moderator

    Hi GSD,

    Thank you for your question. I am however, sorry to hear you are taking this difficult route. I understand it very well, having to turn to SSDI myself.

    If it were me, I would start the process as soon as possible. We have information on applying for SSDI in this section of our site; https://migraine.com/migraine-basics/social-security-disability-insurance-benefits/.

    I can tell you SSDI prefers to know what you can do rather than what you can’t do. For example, instead of saying, I spend all morning in bed due to pain, it may be better to say something along the lines of “I woke up at 9:00am, ate a piece of toast, then when back to bed due to pain” and so on. Does that makes sense?

    Nancy

    Reply Created with Sketch. reply
  • By Sandy Steubing

    If you’ve been going to a doctor(s) regularly and laying the paper trail then start the paper trail right away. After a year my application was rejected. I then got a lawyer to file and after another year I received SSDI.

    Reply Created with Sketch. reply
  • By GSD

    Thanks, Sandy! I’ve definitely been going regularly. Once approved, did SSDI pay you (backdate) for the 2 yrs you were out of work?

    Reply Created with Sketch. reply
  • By shouldbcampin

    My boss is saying she thinks I need to go on disability. She thinks my work is suffering when I’m at work because of my frequent migraines. I have FMLA and use it which I think annoys her but she notices that I’m foggy on many days and sometimes forget things. But I don’t think that means I’m ready for disability. We would go bankrupt. I’ve started writing everything down, getting things dones on my migraine less days (not to be confused with migraine free as I have no migraine free days). But there are days when I have severe migraines when laying under the desk looks really good, I put on my sunglasses and icepack and keep working albeit slowly and not very productively. Can she force me to go on disability?

    Reply Created with Sketch. reply
  • By Nancy Harris Bonk Moderator

    Hi shouldbcampin,

    Thank you for sharing your story with us. I’m sorry to hear your boss is pushing you into a direction you’re not ready to go.

    It’s up to you and your doctor, and SSDI to see whether or not you qualify for SSDI. Your employer may also need to make certain workplace accommodations according to ADA, which you can read about here; https://migraine.com/migraine-basics/ada-accommodations-the-workplace/.

    I would continue to use tools to help you perform your job duties; using a calendar, To Do Lists, etc. I know my phone is a get resource to remind me of my daily tasks.
    You can read more about SSDI in this section; https://migraine.com/migraine-basics/social-security-disability-insurance-benefits/.

    Does that help?
    Nancy

    Reply Created with Sketch. reply
  • By shouldbcampin

    Yes, thank you. I think I just needed to get it out. I’m afraid she’ll find a reason to fire me without technically breaking the law. I admit my migraines run my life and they do affect my work but I am able to get my responsibilities taken care of just a little slow on the days that I’m hurting really bad or am in the throws of brain fog.

    Reply Created with Sketch. reply