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Diagnosis of Migraine & Headache Types

Hemiplegic Migraines

  • By m.claire323

    Two days ago I felt a normal migraine coming on but instead of the normal symptoms I get, my vision went blurry, I couldn’t feel the side of my body and that feeling traveled up to my face. A few minutes later, I couldn’t make out words or articulate.
    I went to the ER and they said it was a rare type of migraine called a Hemiplegic migraine.
    Has any one else had these? It was terrifying.

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  • By Nancy Harris Bonk Moderator

    Hi m.claire323,

    That does sound scary, I’m sorry you went through that.

    Hemiplegic migraine (HM) is a rare form of migraine disease. The hallmark symptom is true motor weakness, which is different than numbness and tingling. Here is information on HM; https://migraine.com/?s=hemiplegic+migraine&submit=Go.

    Migraine with aura includes visual disturbances, numbness and tingling and more. Take a look at these articles for more information; https://migraine.com/?s=migraine+with+aura&submit=Go.

    Let me know what you think,
    Nancy

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  • By Ronan

    I have had something similar, but not the same. My cheek on the side of my migraine goes someone numb. I quickly do the stroke test to make sure that isn’t it. I sound drunk so I don’t talk too much during a migraine attack. Most of all, movement brings on more pain. This limits much of the activity I can do during the worst part. I feel for you m.claire323.

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  • By sjrayman

    I experience these type of migraines chronically. My face goes numb, I am numb all down my right side and both feet. My speech slurs, then can’t talk. Lose vision in my right eye and am so weak I can’t move my body. When this happened a year ago, the docs thought I had a stroke, but realized that it was this rare hemiplegic migraine. I have 4 young children, so I am thinking that there has to be more people like me to relate to. I encourage my kids that Mom’s ok and my husband he doing a great job filling in. Know you are not alone in this struggle!

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  • By Nancy Harris Bonk Moderator

    HI sjrayman,

    Thank you for sharing that with us. How’s your treatment plan going? Is it time to seek out help from another doctor? Sorry for all the questions!

    Nancy

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  • By heaven13

    My former doctor diagnosed me with HM but from what I’ve been reading, I’ve never dealt with this form of attack. My right side starts to kind of go numb and tingly, kinda like the feeling of your body warming up after you’ve been in the cold for a while and the side in question kind of goes weak. But it happens with or without a migraine. Can HM come in different levels of intensity or should I talk to my new doctor about a re-diagnosis?

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  • By Nancy Harris Bonk Moderator

    HI heaven13,

    Thank you for reaching out. Hemiplegic migraine is a rare form of migraine disease that includes true motor weakness as a symptom. Numbness and tingling can be part of migraine with aura which you can read about here; https://migraine.com/migraine-symptoms/numbness-tingling/ and more regarding migraine aura can be found here; https://migraine.com/?s=migraine+aura&submit=Go.

    It probably wouldn’t hurt to get a second opinion from a doctor who is knowledgeable about migraine disease. This article discusses when it’s time to find a new doctor and how to find one; https://migraine.com/getting-help/is-it-time-for-a-new-migraine-doctor/ and https://migraine.com/blog/really-find-headache-specialist/.

    I hope that helps!
    Nancy

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  • By helivesinme

    I hope you have found meds to help you with this.I have had same since a small child. Go blind in one eye.completely numb on one side of the body.cant walk talk think.it is terrible thing to go through! You are not alone. Im 48 years of age now and still struggling.

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