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Living with Migraine

Im at a loss…

  • By 97y22y

    Ive missed work again today. I know that my boss is trying to be supportive but Im hurting his business. The meds I was taking have stopped working. I have an appointment with my neurologist to start yet another new med. My mood is really low. Im irritavle and cant stop crying. Im trying to find the positive but I dont think I can today. I hate that something has so much control over my life. I try to ignore it and be cheery. I try to remind myself that Im conquering it. However, today… Today I feel defeated. A shell. Just a ball of painful nerve-endings.

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  • By Nancy Harris Bonk Moderator

    Hi 97y22y,

    I’m sorry you are having such a difficult time. We understand, migraines stink! Some days we are better at handling them then others. You’ve come to the right place for support and information.

    Do you take medication when your attacks start, to abort them or medication to prevent them? There are three different classes of medications that are used in a migraine management plan; medications to abort or stop an attack; medications that prevent attacks and rescue medications, those to be used when abortives don’t work or can’t be used. The thing is if we have four or more severe attacks a month its time to talk to our doctor about migraine prevention. This article has more details; https://migraine.com/blog/migraine-preventive-abortive-rescue-medications/.

    I wonder if its time to see a doctor who is a “true” migraine/headache expert? Neurologists may be fine doctors but have a hard time being experts in one area because they treat so many different conditions such as stroke, epilepsy, Parkinson’s, multiple sclerosis and others. Migraine/headache disorder experts are doctors who are board certified in headache medicine which is different than being certified in neurology. These articles have information on what makes these experts so special and how to find one; https://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/looking-for-a-migraine-specialist/.

    Keep us posted on how you are doing,
    Nancy

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  • By jsun35

    I am sorry you are going through this and for what it is worth, I am feeling the same way today due to my struggle with migraines and the pain and inconvenience they cause. Most of the time I am upbeat as well but some days (and weeks) are just too much – hang in there, you are not alone! 🙂

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  • By migraine mermaid

    I’m new here, and have been suffering from chronic migraines for the past few years, but more so intensely this year. I also have occipital neuralgia that causes more pain. I’m feeling very defeated lately as every medication seems to be a failure. Topamax, maxalt, tramadol, fioricet, blood pressure meds, even a nerve block injection as well as multiple iv infusions of magnesium and anti nausea meds to help the vomiting. I’ve made 3 days to work this month, and I’m on FMLA. I feel so defeated and alone because I know my job is on the line and my health should be my number one concern, but I feel as if my neurologist has exhausted every option. I even applied for disability. I feel as if I need to let my job go and focus on getting better, but I have no means of doing so without it. I have pain almost every other day. I can’t take it anymore and I hardly have a support system either. I’m at my wits end.

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