Hello all, I’m new to these forums.
I got my first migraine when I was in 6th grade. It was horrible. From then on I’d get migraines with awful aura / scintillating scotoma, numbness in my face and hands. Then when my vision would clear the awful headache would come. I never had nausea (never vomiting) with the exception of just having stomach irritation from taking medications (which was always relieved by eating). Noise and light always bothered me in the early years. They would start, follow a predicable process and in 24 – 36 hours I’d be fine. I’d have them about twice a month unless I had some kind of crazy stress going on (lack of sleep etc).
I traced it back to fall off a horse onto my head/neck and never having any kind of rehab therapy, since from that day on my neck always hurt and I started a cycle of self adjusting, which at some point also included a constant nagging feeling in my left SI joint.
I also had chronic non-migraine episode headaches, and to this day it is easier for me to count the days in a month when I don’t have a low to moderate headache (base of the back of my skull thru my eyeballs, like someone is squeezing my eyeballs and hit the base of my neck with a baseball bat).
Over my later teens and 20’s I had ct scans, I saw a DO that would do mild spinal adjustments. I kept a food diary, and did bio-feedback therapy. Most all of those practices fell by the wayside as I wasn’t getting any return in control or pain relief.
Then as the years went by I had a few prescriptions, the two I remember were Maxalt and Imitrex. I also saw a chiropractor on and off. Both when I had the money / insurance.
Then in my mid 30’s my migraines began to change. No more numbness of face and hands, no more smell sensitivity. I’d get the pre-headache visual fireworks show but then when that would clear I’d have an almost intoxicated feeling (not a fun one) where I feel’ditsy’, have what I would describe tunnel vision with a change in my vision (higher contrast, everything bright).
Lately I’ve been having an increase in the migraine activity, not an increase in pain, but I’ll have multiple episodes of the visual crap. I’ve also had non-stop (the classic ‘crick in the neck’ type) pain either down my neck and / or into my shoulder blade area. I do get relief with a TENS unit. It gets better but it’s been there for over a year now. I’ve had a non stop bad headache for over 4-5 days now with no relief taking high doses of NSAIDS. Sometimes the only way I can get a full nights sleep is with a TENS on, or else my neck or my left SI joint wake me up multiple times a night.
I finally went to the doctor last week who sent me for xrays and their office called me back saying I had arthritis in my neck with cervical stenosis, and they are getting me into see a neurosurgeon.
So… I’m here. My husband is deployed right now and I’m just seeking the comfort of others who are going through this.
My mother, who is an RN, suggested I get seen by the neuro and an osteo.
From what I’ve been told my father had bad headaches. Unfortunately I seem to have passed on the migraines to my youngest son (who also has neck issues). My oldest son has escaped this fate.