I have been diagnosed with chronic migraines for about 8 years now, and have started a new (and technically my first real) treatment plan just this last year. I am currently a college student, and I honestly thought I would have already figured out my migraines at this point. But, as a lot of you may know, life isn’t always that simple. I am seeing a bit of progress in some areas with my new treatment, but I’m also seeing some new issues arise. One of them is the emotional baggage that comes with chronic migraines. I have spent years avoiding that side, but it’s finally catching up to me and it’s impossible to ignore. During the past 2 years, I really struggled with anger and frustration because I didn’t understand my health and I felt way too dependent on my family and friends. I’m finally learning how to accept my migraines, but that still doesn’t help the feelings of isolation and guilt I sometime have. Sometimes I get mad not necessarily at the pain, but just at the inconvenience. I’m the kind of person who likes to be busy, to be independent–which makes just the idea of migraines an absolute nightmare. And being a college student, it sometimes messes me mentally. Just the fact that I have to live very differently than my friends, and not being able to go on spontaneous trips, or staying up late or eating whatever I want–it all just sucks sometimes. And I don’t personally know anyone else with chronic migraines, so I don’t always feel super comfortable talking about this stuff with most of my friends and family.
So, I decided to look into different places to find not just a support group, but I guess a community too. Just a place to talk to other people who can understand my rambling, and a place to hear other’s perspectives and advice.