I am Jane, lLil’s mother. Lil is 17 and suffers from chronic (daily baseline migraine ) migraines. I have recently heard of TMS – the process of using a handheld device that sends magnetic impulses to the brain. This can reduce the pain as well as the number of migraines . Medication does not help Lil and usually leaves her with horrible side effects. She recently had an MRI and had immediate relief for several days. Has anyone heard of or used magnetic therapy?? B
Cerena, a transcranial magnetic stimulation device, received FDA approval in December. It will not be available for patients, but the company is working on a smaller device called SpringTMS. They are hopeful it will be available this year. I have to admit I’m skeptical! Keep an eye on the Migraine.com blog. One of us will certainly write about it whenever it is available.
(As you know, I responded to this is another section of the forum, but wanted to comment in case someone else reading this is curious.)
Thank you for your reply! We live in North Carolina. There is a Psychiatrist here that uses TMS for depression. Ironically, he and our daughter’s neurologist have worked together often. He works with a rather large TMS “machine” called Neurostar. It reminds me of sitting under a hair drying machine as it is a chair with a large head piece that lowers onto the patients head. My daughter has received a referral for a consultation.
I understand you being skeptical but something very interesting was. Opted recently after our daughter had a MRI. She was noticible as close to pain free as she has been in years. It was amazing. We have heard of people feeling incredible post MRIs. We have also heard the opposite- so I think the level of magnetic treatment is key.
We will post again when we know more.
My daughter also received an RX for,the Celafy headband. I am more skeptical about this and we are holding back from buying as it is costly.
Oh Kerrie- great to know about being able to get a full refund! You are so knowledgable . Thank you for,the gracious compliment. Our daughter contracted viral meningitis and encephalitis almost 9 years ago just before her 9th birthday. The residual effects from this was some brain injury and chronic (always a daily baseline ) migraines that seem to be predominantly triggered by the weather. While she is on several meds to aleviate moods issues, hormonal issues and seizures (some double as migraine preventative) she s extremely sensitive to migraine meds of all types. We are willing to try anything to find her some relief. More information than probably needed but if it triggers a solution from someone else we are willing to put it all out there! Many thanks again!
I can, unfortunately, relate to how difficult it is to be the mother of a chronic migraineur. My 13 year old daughter had her first migraine in August of 2013 and medications either work for a short time or not at all. She’s had her current migraine since Jan 6 — so far nothing that has been tried will abort it.
As a result, I have thoroughly researched many different non-medication options, including TMS. I’m not certain how the large TMS for depression differs from the handheld model. However, I recently contacted the company to find out when the TMS for migraine will be available and they said that it would probably be mid year. The company – eNeura – responded very quickly and would probably respond to you, as well — www dot eneura dot com.
Alycia- thank you for your response ! There is a Dr in our town that uses “Neurostar ” which looks similar to a dental chair with a headpiece. It targets frontal lobe areas and that is where my daughter’s migraines are always located. In order to have insurance pay for treatments she will have to be labeled “depressed”. I think anyone in chronic pain would become depressed at this point. She has an appointment in a week. The dr feels optimistic and excited to treat her. I will post the results
Dr. Young from Jefferson Hospital of Neuroscience prescribed STMS for me. I have been using the STMS device for 5 days. There’s no discernible change in how I feel but I thought I’d give a report on my experience so far.
The device is easy to use – turn it on and press a button to prepare the treatment. When it’s ready it beeps – hold it to the back of your head and press the buttons on each handle. You hear and feel a knock which may have been startling if the instructions hadn’t prepared me for it. After the knock you’ve completed one “pulse”….my prescription is for 4 pulses twice daily. I can also do 9 pulses as a rescue if needed. I have not felt ANYTHING unusual when using the device – no dizziness or pain or anything like that.
eNura has a nurse contact you regularly by phone or email to discuss how your treatments are going. I spoke to my nurse for the first time today. She was careful in what she said due to HIPPA rules, however, she said 30% of her patients (she has 100 like me) receive some reimbursement from their insurance companies. Also, patients that DO experience results notice improvement in 7-10 weeks.
That’s about it for now. I will continue the treatments and post updates….we’ll see where it goes…
Don’t know if anyone is reading this but here’s my STMS results after 21 days of use.
10 severe enough to require rescue – tried STMS first for all (I don’t use rescue for 1-3 pain/nausea)
STMS *seemed to provide relief at 90% with 2 and 50% with 1
7 required meds and 1 of those 7 required an ER trip
*I have 508 days in my log. After reviewing the log, it’s not uncommon, but not the norm, for symptoms to subside or completely go away. Based on this I have no real evidence STMS has any value. Having said that, I will continue to use it as daily and rescue in hopes of a miracle.
I was able to try it once in my doctor’s office who had a sample one. I found it bulky and the loud “gunshot” type of noise it creates when using it may worsen a person’s condition. I know that there is a second generation in the works that would be less bulky and quieter.
I also know that you have to rent the machine, which costs over $200 per month (correct me if I’m wrong). I’m really glad that you have kept such a detailed log of your usage. I hope that anyone who uses it does find relief.
Thanks for sharing your story!
It is quite loud….especially when I used it during 8-9 level pain. We are all different, but the noise is not a show stopper for me IF I get results.
As you said, you rent the device. As a patient of Jefferson I was given a one time discount and charged $500 for 3 months. There’s also a $50 shipping fee. After the 3 months the device stops working. To continue using it, you have to purchase a chip that plugs into the device and turns it back on. The chips are $250 a month.
Very expensive but if it helps I’d pay $500 a month. As they say “the jury is still out”
This is my last update as I shipped the device back today. STMS was not effective for me. Hopefully my experience does not discourage those interested in trying TMS because there’s data that shows it’s helpful to some….unfortunately I am not one of them.