Hi, I’m Chelsea, long time lurker. I read some of the articles on disability, and I’m sure there are forum posts somewhere, but I figured I’d get this all out there. Any personal experience or advice on ANYTHING would be great.
I’ve been getting migraines since I was 11 and will be 24 soon. I had tension headaches a lot but didn’t get migraines very often. They got much more frequent when I got older, but it really started when I got mono senior year of high school. I had it for about a month, felt better, went back to school and then got sick again. I got a headache that wouldn’t go away, and suddenly started getting migraines near daily.
So that’s when I started the process of seeing docs, countless meds, ER trips etc…And I never had to worry about insurance. My dad works for the state, and I’m on his plan. They cover nearly every thing, even the botox for the past few years (though that took quite a battle.) I consider myself very lucky in that department.
The problem is, when I’m 26, I’m cut off. My ‘plan’ was to have a career and my own insurance by now. I did one year away at college, couldn’t keep up so went part time at the local community college while I focused on getting better — physically and mentally. The plan was always to go back and get a bachelors. I maxed out on credits at the CC in 2011, and I’ve yet to go back.
Even if I could (I can’t get financial aid until I pay 9 months of my student loans) I don’t think I could handle a full course load. And I definitely couldn’t handle that and part time work. And I would have to work to continue paying off my loans, or I wouldn’t get fin aid. So it’s this big cycle that I can’t handle. I struggle with 15-20 hours a week, making $9 an hour at a daycare. Every day I get closer to 26, I get more stressed out.
I kept altering my “plan” but I’m starting to try to accept it might not happen. And even if I did finish school, get a career with good insurance in time, I think full time of any job would be stretch me too thin, maybe in half.
When I was 18, I thought I’d be ‘cured’ by now. Or at least mostly functional. My boyfriend is all about me trying, and thinks I’m being negative and worrying about this too soon. I know he’s trying to be positive and helpful. But I’m trying to be realistic. I know disability is a long process, and if it’s not taken care of by my 26th birthday I’ll be in serious trouble. I think if I have some of you agree with me, he’ll understand better.
So this is a really long post to basically ask, can I get disability for migraines? I’ve been treated for depression/bipolar/anxiety since I was 14, and while its relatively under control now, it has also been disabling at times. Has anyone had any success? Where do I start? I live with my boyfriend and he takes care of nearly everything, but without insurance, I’m doomed. I have a very low income, and currently have medicaid as a secondary. I still want to work a little. It’s stressful, but it helps me stay on a schedule, feel somewhat like a normal person, and I need to have my own money. But because I CAN work a little, am I not ‘sick’ enough to qualify? Are there other ways to get insurance coverage?
I know other people don’t think I’m ‘sick’ enough for disability. Some times I don’t think I am, and even the medicaid makes me feel like I’m “abusing the system.” But if I do push myself to work full time, I won’t have a life outside of that. It would be detrimental to my health, and I wouldn’t have time for doctors appointments and treatments. I barely do now. I’m not being negative, I’m just trying to do what’s best for my body.
Sorry for the long post, it’s even giving me a migraine. I just really need to feel like I’m not alone, that this is normal and okay for someone in my situation. Thank you.