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Migraine and seizures

  • By Carolelaine

    I have had chronic migraines since I was 11. About 15 years ago I had a grand mal seizure caused by a medication I was taking at the time. Several weeks after I realized that I had not had a migraine. It seems that the seizure had “cured” me. I was migraine free for about a year before they started up again worse than ever. At one point I discussed electric shock therapy with my PCP but fortunately I was able to minimize them with diet. I am very curious to know if anyone else has had a similar experience.

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  • By Nancy Harris Bonk Moderator

    Hi Carolelaine,

    Thank you for sharing your story with us. We’re glad you’re here and part of our community – welcome!

    I’ve not heard this before and don’t have any personal experience with seizures. I hope others will be along soon to share thier experience with you.

    Nancy

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  • By Rebecca Keymaster

    Hi Carolelaine –

    Wow – I’m so glad that you got some relief — even if it was for one year. Question — after the seizure were you put on anti-seizure medications?

    I ask because one of my doctors years ago put me on Dilantin (anti-seizure med) because there was some research suggesting that it could be seizure related (I didn’t read the study). I have to say, when I was on Dilantin it was the only time I stayed completely migraine free. I ended up going off of the Dilantin simply because I couldn’t tolerate the side effects 🙁

    I’m really happy to hear you’ve gotten relief with dietary changes! May I ask what type of changes helped?

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  • By Carolelaine

    HI Rebecca,

    I was not put on an anti-seizure medication because it was a side effect of an antidepressant I was taking at the time. I think I may have been on Dilantin at one time ( there have been so many I can’t keep track). Medications had either no effect or lost their effectiveness very quickly.

    My doctor and I were considering electric shock therapy when she asked me to try totally changing my diet. I stopped eating and drinking anything processed, or containing artificial ingredients. Nothing from a box or can, no fast food, no juices or soda. The results were fast, within 2 weeks I was almost completely migraine free and stayed that way for over 3 years. The past year has been difficult and I believe that stress has caused them to come back, but they are not nearly as bad as before and I am mostly able to function (if I have to) when I get one.

    I do not have many of the triggers that a lot of migraine suffers do, I am able to eat cheeses and drink wine which will sometimes break the migraine, my doctor said that it could be because the wine somehow effects blood flow. I’m not sure how but if I can get some relief I’ll take it.

    I do a lot of cooking and only eat in restaurants where I’m sure I can get something scratch made. It’s a lot of work but well worth it.

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  • By Rebecca Keymaster

    That’s very interesting! I also changed my diet and have been amazed at how much better I feel. Likewise – nothing processed, no dairy, no meat. I also can eat cheese and drink wine (a little).

    I find I have a really hard time with the restaurants and not giving into temptations as they pop up. I’m a total sugar addict – sweets are my downfall!

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  • By Carolelaine

    Fortunately sugar doesn’t bother me, I’m a sugar addict too! I’ve never met a bakery I didn’t like. 😉

    One of my favorite things to eat was a Genoa salami & provolone sandwich, now I might have one a year. It’s so hard giving up the things you love but if it helps you feel better it’s worth it in the long run.

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  • By Jessannedavis

    Hello Carolelanie,

    I’ve had migraines since I was a toddler and just prior to turning thirty I started having both types of seizures, the grand mal as you’ve called it but I call the the little ones and the big ones. My migraines didn’t stop. I’ve had both for two years now and just recently had someone at a pain management doctors’ offices (it was a patient) inform me the two can be connected. I’ve been to numerous neurologists since being diagnosed at nine or ten and since 2015 I’ve been seen by five or six and not one suggested they might be connected. I’m so disappointed in modern medicine but my newest neurologist has actually listened and told to instead of at me so maybe there’s hope. I wish mine had stopped, migraines or the seizures. I have the partial brain seizures about three to five times a day on average and the big ones about five or six a week, more now, now it’s once a day. My migraines are out of control too. I’m on a crazy strict diet since 2012 when I did an elimination diet when diagnosed with Endometriosis. Good luck!

    Sincerely, Jessica Anne Davis

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  • By Jannii

    Hi All, I once suffered a mini stroke after a severe migraine which went on for three days, was living alone and had lost feeling in my left arm and my lip on left side felt numb yet I could walk, manage to phone my Doctor who told me the migraine had caused it and that feeling would return after three days, it was quite scary but she was right and all feeling did return after three days and I never had any follow up treatment and have not suffered another mini stroke like this in eighteen years. was wondering if any of you had suffered a mini stroke like this brought on by a migraine. I have had migraines all my life, it runs in the family, all my sisters, nieces and nephews some suffer worse than others but its obviously hereditary.

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  • By Nancy Harris Bonk Moderator

    Hi Jannii,

    Thank you for sharing your story with us – we’re glad you’re here!

    I bet that was a scary episode, but good to hear it resolved. We dislike to see migraine pain last longer than 72 hours as it can increase our risk of stroke and status migrainous. You can read more about that here; https://migraine.com/blog/what-is-emergency/.

    You’re right – migraine is thought to be a neurobiological genetic disease and it would seem there is a strong family connection.

    Keep us posted on how you are doing,
    Nancy

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