Welcome to the Migraine Journal Forum
Welcome to the Migraine Journal Forum
I am glad to have finally found a site where there are those that can relate to what i’m going through! People that don’t experience migraines don’t understand.
Hi tonja – we’re so glad you’ve found us here at Migraine.com 🙂 Yes it’s true – you are not alone, and this is a great place to meet others who understand first-hand what it is like to experience Migraine attacks.
Have you had any experience using a Migraine Journal?
Hi, does anyone know if there is a group that is working with employers to educate them on this disease? I am wanting to start a program here in Texas to work with employers to help them understand that their employees have a disease and that they should make accommodations for the employee who is sufferring from a migraine. I am dealing with an employer who is punishing me for missing work due to my severe migraines and it has me wanting to start an advocacy program.
By Diana Lee
ladykricket: The National Organization on Disability does this kind of work: http://www.nod.org/. They would be a natural fit for your efforts, but an organization focused on migraines would be awesome. I have written about accommodation issues in the past on my personal blog: http://somebodyhealme.dianalee.net/2008/06/ada-accommodations-making-workplace.html
I hope this helps!
By Amrita Bhowmick, MPH Keymaster
ladykricket: We’ve just posted Diana’s latest article on ADA Accommodations & Migraine Triggers in the workplace here:
Hi, I’m new to this site & forum. Although I’ve suffered migraines for about 30 years and each AM Migraine has been debilitating, taking my day away, it has only in the last year that they have come to be Chronic Migraines (non Medication Overuse). I couldn’t make it to work in the AM, or the early afternoon as the migraines weren’t over and/or I’d have side effects from them & meds…My employer will not accomodate me with a later shift stating it would disrupt the workflow of the department I work in. Having many skills I suggested that I could be a ‘fill-in’ or work ‘overflow’ where needed, also a NO, three requests per ADA Laws have been denied and I am being let go. Bye Bye Do I have anywhere to go to have a say about this? So that I may be a productive member of society and have equal enjoyment of the priveledge or right to employment?
It boils my blood when I have to call in with a migraine that is so bad I can’t drive etc. Then the boss says “Oh you have a headache”!
My simplexity, have you considered a drug holiday and just tough it out? I know how hard it is but I’ve had to do it to break those cycles.
Barbrn, Thanks for your input! 🙂 Yes, I most often just “tough it out”, I have no choice many times as I awake with a full-blown migraine and the rescue meds won’t work anyway. And I can’t tolerate any of the preventatives! I use ice,heat peppermint oil, anything natural.along with quiet dark room and focusing my thoughts elsewher to help ease me into a place where I can sleep it off. For migraines I get with the warning aura in the afternoon or evening, I will take rescue meds, and I keep track of what I’ve used in my Journal and try to alternate.
@ Ladykricket: Hi! That is so wrong to be punished by your employer and I wanted to tell you that this happened to me as well!!! After using up my FMLA Hours via intermittent absences the HR Manager told me that I couldn’t miss any more time and if I did I would be ‘disciplined’. That was very stressful. Explaining to them that Migraines just don’t disappear because my FMLA ran out did not compute with them and I’ve been let go as they claim there are NO accomadations for me. 🙁
My Simplexity, I understand exactly as I am facing the same thing. I have had a migraine for 3 months now and am running out of FMLA time. I am very aware that I am facing losing my job but what can I do when every 2 days my migraine is so bad that I can not even get out of bed?
I am sorry that you were let go but you said that you put in an ADA request and they said no? I thought that employers had to at least review the request. I know that my boss kept denying my request so I went to HR and they have agreed to work with me. Of course that was before my FMLA ran out so I don’t think that will happen now. I would check with someone who knows more about ADA requests.
Hello! I’m new in this forum (indeed, this is the first forum I participate in) and really, I’m so glad to find you!!! I’ve started to experience severe photosensitivity during my migraines and I would really be grateful if anyone could tell me what to do when I need do use sunglasses indoors (I mean, I would like to find a less weird solution…)
A friend of mine suggested that, besides writing a migraine journal, I could start measuring my blood pressure regularly and write it in my migraine journal as well, to see if it has some sort of connection with my migraines, either as a consequence or as a cause.
Has anyone tried it? Do you think it is a good idea?
Actually Maria, using my prescrition sunglasses indoors at work where there are lots of fluorescents is helpful, wierd or not.
By Diana Lee
Like Gregory I just wear my sunglasses indoors and go about my business. It helps enough that I couldn’t care less what anyone thinks!
It certainly couldn’t hurt to keep track of your blood pressure to make sure it isn’t high, but I don’t know that there is a significant correlation between high blood pressure and migraine. It is common for people experiencing pain to have elevated blood pressure, though.
Thank you for answering!
Gregory and Diana, thank you, it really helps knowing more people that have the same problem as I to get on with this and feel better in my own shoes.
Diana, when I asked if it would be useful to keep track of my blood pressure, I was expecting to have low blood pressure instead of high – I don’t feel pain, my migraines consist of aura, alone, and my main symptom is dizziness. Since low blood pressure can cause dizziness too, I figured there could be some sort of relation there, although, honestly, I am not sure of the reasonability of this supposition.
I am new to the migraine.com forum. I was wondering if anyone knew if migraines could be a side effect of a brain injury. It seems that mine started around the time of my first concussion. (Then with the dizziness of the migraine/concussion and the weakness, and lack of motor skills, more concussions followed with falling).
I also wonder if anyone knows any way to keep my teacher’s off of my back when I miss a day of school here and there…
Hi my name is Patty. I am 41 years old. I started getting Migraines after my stroke 2 years ago. Then March 2009 they diagnosed me with MS. That kind of explains the Migraines. I just went to the Eye Doctor today because with the last Migraine I had I lost my sight in my right eye for 4 hours. I was disorinated and really was freaked out. I was told by the Doctor that he want me to see a specialist because I could have had a mini stroke. So again I have to have another MRI. I am so claustrophobic They need to put me out before I will climb back into another MRI.
I have had 4 MRI’s about 8 CT scans. One spinal tap. I swear I am glowing. But I have never in my life ever had a headache until the stroke in 2009. With my migraines I have the dancing colorful lights flashing in my eyes and I know when that happens I have enough time to get my icepack out of the freezer and lay down I am truly grateful for Migraine.com I can record my migraines and talk to others with what is going on.
Again Thank you.
Hi I want to say yes
Because I have MS and White brain matter disease. I also have a TBI from 1990 although I did not have any headaches or Migraines until Jan 2009 after my stroke. So I have had a headache everyday since Jan 19, 2009 sometimes it is mild and sometimes it changes into a Migraine.
Let me back up for a minute
When I had my stroke I was driving to work and went off the road. They said I hit my head pretty good. Good enough for 14 stitches. I did have my seat belt on but my air back did not deploy and I hit my head on drivers window. I went though lots and lots of physical therapy. My balance was so off I fell a lot hitting my head again over and over. I did not know I was falling until I hit the ground. So yes I think it has a lot to do with brain injuries. I hope I answered you question.
Thanks for sharing your story Northernlights. It is kind of a relief to know that there is someone else out there with some of my symptoms. Thank you for sharing your story.
What kind of things do you write in your migraine journal?
If you get a chance to review this thread, it will give you some good ideas of things you might want to include. Additionally, Migraine.com has an online version that could really simplify things for you if you’d like: https://migraine.com/migraine-meter/ There are also many mobile apps for journals that might help you decide what you want to keep track of.
I hope this leads to a way to at least cope better with this affliction.
At least we know it’s a good way to have fewer, more effective appointments with our doctors and specialists, and better diagnosis and treatments. That’s a great way to help cope with Migraine in my book 😉
Does anyone here have abdominal migraines?
ladykricket, does your employer offer short term disability? Mine actually suggested it and my Dr. was accommodating so today is my first day with no anxiety about having a migraine. I am fortunate that my std goes up to 6 months!! But it is allowing me to seek treatments & also bring my anxiety WAYYYY down.
By Cathy S
Profile photo of Cathy S
By Cathy S—February 9, 2016
I have suffered with chronic migraines since I was 17. Nearly 40 years. I’ve tried everything known to mankind to treat them .. to no avail. I just had my first round of Botox on January 18th. Please tell me this might give me some relief?? I have a migraine sometimes every 3 weeks, sometimes every 6 weeks. They can last anywhere from 3 days to 6 days. I take all of the prescribed “preventive” drugs my neurologist has me on. I go to his office immediately (the first day he’s open, my migraine normally attacks on a weekend) and get a butt cheek full of Dilaudid, Toradal, and Phenergan. Then I’m driven home in my narcotic stupor to try to sleep for a few hours. Most times when I wake up I still have the migraine. I’m just praying that I will see a little relief from the Botox. Has anyone else tried it? Did you notice any differences in frequency? Thank you for listening. I’ll pray for you all because I know how horrible these things called “migraines” are.
I get these quite regularly…I was in denial for a long time, or through a day I would repress the pain and sometimes be able to ignore it while I worked, but it would intensify dramatically when I would wind down from work. I suppose it could be stress-related…I’m going to be a lot more aware now and try to overcome this with a healthy lifestyle, natural remedies and mindset.
I have been medication-free for several years because medicines make me violently sick sometimes (and they’re hard on my liver)
I have had very little support from those around me, I’m so glad there are resources out there.
I’d LOVE to be able to manage this better and erradicate it, willing to do what it takes. I’m not sure how to use this Migraine Journal, I’m open to suggestions and advice 🙂
I read on here that using the Migraine Journal can help by tracking my symptoms…?