So this is my first time posting about my migraines… I’m not really the sharing type. But it’s been about three years now since my chronic migraines started and so far doctors haven’t been able to help so hopefully someone on here can. I started with just seeing my PCP who referred me to a neurologist. After that neurologist gave me 6 different medication samples and told me to “try them and see which works best and let me know” I decided I should see a different one. Since then I have seen 5 other neurologists… switching to different ones after they each told me they could do nothing more for me.
I’ve been out of work on disability because of the migraines being so bad. I used to work at a Clorox plant making Pine-Sol and the noise, lights and smells drove me crazy and constantly vomiting from the pain.
I had a bout with depression and ended up in a mental health hospital. But I’m all better now… mentally at least lol.
I’ve tried dairy free diets, meat free, caffeine free etc to check for dietary triggers and found nothing to trigger migraines since I have them all the time… also had allergy testing and found nothing.
I’ve been on countless abortives and preventives… nardil, inderal, relpax, sumavel, imitrex, depakote, topamax, corgard, norvasc, lexapro etc etc. The only medicine that gave me relief and took away the migraines at all was DHE by IV when I was hospitalized due to side effects of topamax. But after I was released they came back almost immediately. I’ve also had two rounds of BOTOX and occipital nerve blocking injections… neither of which helped at all.
About 8 months ago I started blacking out. After I blacked out and hit my head pretty hard I was taken to the ER and diagnosed with syncope… another problem to deal with lol.
But now I’m seeing another new neurologist in Atlanta at Emory Midtown. I’m now on Lamictal, and just had an MRI and MRV done with and without contrast and I’m waiting on the results from those. I also had a 48 hour EEG done and they found a slowing in my left temporal lobe. And also found that I may have delayed sleep phase syndrome. I’m also waiting to see an ophthalmologist as my neurologist found my left optic nerve to be swollen.
So, that’s my story. Sorry it was so long… it’s actually the first time I’ve ever typed it up.