I wrote here not long ago that I started seeking treatment for my menstrual migraines. I went about a month ago to a clinic (for sinus infection) and mentioned my menstrual migraines and the doctor there suggested I try naproxin 500 mg. This weekend I had my usual menstrual migraine and took the naproxin but it didn’t really help (just moved the migraine to a different place in my head) and it also caused me extreme nausea.
This morning, I went to the PCP I was assigned to (first visit) and he gave me samples of Trokendi RX and said I should take it about 2-3 days before I know the migraine will hit and we can see if it helps prevent them.
I’ve been doing research on Trokendi and to be honest, I’m terrified to death. Other than migraines, I have never had any health issues (I’m the kind of person who goes to the doctor once every 2-3 years for the flu or sinus infection). I’m reading up on the Trokendi all kinds of stuff that is just not sitting well with me. I’m concerned because I also read in a lot of places that topiramate is mostly used for prevention if you have 6 or more migraines episodes a month. I am relatively lucky in that I have 1-2 a month (and if I have the other one, it’s usually a mild migraine that goes away with 1 or 2 Advil). I’m not sure that a prevention med is the way to go and the side effects just terrify me. When a drug has “make sure to tell your doctor if you’ve ever contemplated suicide” as a warning, that doesn’t make me feel all that great.
I know I’m very lucky in that I have only one big episode a month (though it’s a killer) and that my migraines are very predictable in terms of when they happen and how they will go. But I feel like I need something that’s a little gentler (like the naproxin-type thing) that will help stop the migraine when it begins. I’m not sure what course I can take or what drug I might suggest to the doctor (if he’s open to prescribing it to me at all).
Any suggestions? I don’t want to sound as if I think I know more than the doctor. But I also know my body and I know what I’m comfortable with.
I’m also wondering if it’s better to see a neurologist or a specialist that might know more about how to treat menstrual migraines, since they’re specific types of migraines (and, just my luck , supposedly the hardest to treat). Should I ask the PCP for a referral?
Thank you for your help.