Hoping someone on here might be able to help…
Since I was about 14 (I am now 27) I have been getting headaches. The first started with puberty and were related to my period and then eventually evolved into more migraine-like in nature. I was diagnosed with migraines in high school and trialed various different daily medications, but had too much trouble with the side effects. The migraines/headaches seemed to level out in college, but around the age of 21 they returned and while less migraine-like in nature, still were occurring on a very regular basis so I was started on Topimax. Yet again, the side effects were too much and I was taken off and started on a regimen of Excedrin and/or Fioricet as needed. The headaches seemed to continue, but eventually I just learned to live with them. My symptoms at that time were headaches that would start suddenly, usually without nausea or light-sensitivity and I could manage with Excedrin for mild to moderate headaches and I’d take Fioricet for more severe episodes.
Over the last 2 years I have found that the headaches have increased in their frequency and duration. They are coming on more often and taking sometimes days to go away. I was to the point where I was having to take either Fioricet or usually Tylenol around the clock for 1-3 days at a time. The headaches have also changed to be only one-sided (always right) and are almost always accompanied by a dull-aching neck pain on the right-side that travels up the back of my neck into my right temple and behind my right eye. At their worst, my right inner eye also hurts and I have shooting, electric like pains just above my right ear.
I went to my neurologist (same one since age 14) and he basically shrugged it off and said other than daily medications, there is nothing they can do. I had a repeat MRI and all was normal. I did some research and realized I may be making matters worse with all my medicating and cut myself off cold turkey from the Tylenol and Fioricet. This worked for about a month (1 headache in 4 weeks versus 1-2 every few days), however I’m now at the 6-week mark of no medications and the headaches are back in full swing. I’ve had three this week alone.
I have tried the chiropractor for adjustments several times a week with no relief. I have tried acupuncture with no relief. I checked in with my orthopedist to ensure that I had nothing going on with my neck to be causing the right-sided neck involvement and had a normal MRI/MRA of my neck. I also went for a second opinion with a new neurologist who also told me it’s daily meds or bust.
I have tried keeping a food journal and the only thing that I can definitely attribute to my symptoms is alcohol intake, which I have completely stopped several months ago (I was a social, few drinks on the weekend drinker to begin with).
I am hoping someone may share my symptoms and be able to offer some insight because both eastern and western medicine are failing me and after 13+ years of headaches, I’m at my wits end!