I’m new here – so if this is discussed somewhere else, please direct me. I have had botox injections (4 rounds so far – every 3 months and only noticed improvement after the 2nd round) but haven’t heard of nerve blocks before, would appreciate hearing about it. Thanks.
It’s typical to see improvement after the second or third round of Botox injections. I do have to mention that Botox is used as a migraine preventive medication – this helps prevent attacks. Nerve blocks are not preventive in nature, rather used to temporarily relieve pain for some.
Thanks for responding. Do you think that since I have only seen improvement for one cycle, in the total of 10 months since I’ve been receiving (every 3 months) it’s unlikely botox is going to help me?
Thanks for clarifying that nerve blocks are used to temporarily relieve immediate pain. I will check out the link you provided.
Thanks for replying. I have had 4 rounds of botox so far (it is every 3 months). Not doing anything. On topamax (preventive). So the nerve blocks/trigger point injections last 5-8 days for you? Do they kick in right away? Do you get them right when you get a migraine or do you pretty much have a migraine (or cluster headache) all the time? I appreciate you sharing your experience with me! I definitely want to pursue this!
Wow! 2 years! Now that’s a lot of patience! I know I’m not willing to wait that long for botox to kick in. Sorry abt the intractable migraine and being inpatient. I’m glad that you are able to get some relief from the pain. Thanks again for sharing your experience with me. Hoping today’s a relatively good day for you…
Before my insurance approved the botox, my pain specialist tried an occipital nerve block. I’d say I have a high tolerance and it hurt…it really hurt. It’s the type of pain that made it so bad. For me, it didn’t help much, but I think thats because of where I got them. I have most of my pain in the front of my head and my face, and the injections were in the back of my head. I was completely numb there, but I still had the facial pain. The total numbness wore off within 12 hours, and it was nice that my scalp was a lot less sensitive for a week or so. I think I would have been more beneficial for me if he had done a trigeminal nerve block. I would have tried it but insurance finally covered the botox.
I had an improvement after the first treatment but I think after two years it helped the most. It’s normal for it to take a while and have a cumulative effect. I didn’t have much of a change between the 3rd and 5th, but I just had the 7th? and it seems to have helped quite a bit. If its financially feasible for you I’d suggest keeping it up. One of my physician assistants gets them and said she didn’t have much relief until about two years every 3 months, and they help her more each time.
So sorry the occipital nerve block was so painful. I’m cringing just reading about it. [Shudder.] Glad you’re getting some relief from botox. I guess time will tell for me w/botox…and details like if I will still have a job and insurance and stuff. Anyway, thanks for sharing your experience with me. Take care.
Hey fellow migraineurs,
I have gotten Botox for years w relatively great preventative results. ( I even paid for it years bf it was approved by insurance). In addition to other prophylactic meds and prn break through meds I’ve managed as a migraine headache patient. And I too have been experiencing a resent headache flare that has been incapacitating in nature. It can be frustrating when you feel out of options. The doc recently performed an occipital and supraorbital nerve block on me a few days ago. The initial local anesthesia was very soothing. But when it wore off the headache returned. Now I have my fingers crossed that as the steroid kicks in the headache will dissipate. The way these blocks were explained is they can be used in conjunction w Botox for patients who aren’t covered for entire three month period as a bridge. Fingers crossed!!
Hi Lizzie. Really hope this works for you. I’ve talked to many people over the years for whom nerve blocks work beautifully, so I hope you are one of them… like everything one can try with migraine, they seem to either work for your form of the disease or they don’t. For me personally, I’d get maybe 4-5 hours of numbness, then a 4 day killer migraine, then no change in pattern. I tried them for years because that particular headache specialist was so insistent on them, but alas! Fortunately, most cycles, my head responds somewhat to botox. Sorry you’re having a flare-up. Hugs.