Forums


Surgical Options

Neurostimulator implant surgery.

  • By Kim Leonoudakis

    Hi,
    Thanks for sharing. I’ll check out your blog. I got my life back to with my Neuro-stimulator implant surgery in July 2013. I live in California and flew to the Reed Migraine Center in Dallas to do the trial and then the permanent. My insurance didn’t cover any of it. I am so happy I did it. It was worth every penny. I would love to see insurances cover this for others that are still suffering and can’t afford the trial. It’s amazing!!!
    Kim

    Reply Created with Sketch. reply
  • By MsPiggyknows

    Julia-I just had the surgery done in Dallas at the Migraine Treatment Centers of America. They patented the Omega Procedure. Google it and then fill out the online form. A coordinator will contact you and help you find a location closest to you.i live in Northwest Arkansas. This has given me my life back! I had headaches 5 out of 7 days a week and the other 2 days were recovery plus I usually had a tension headache on those days. I discovered the procedure on this site mentioned in a discussion in 2012. I googled it and requested the info. I did my trial on April 17, 2015. My perm was May 19, 2015. Since that date I have only had one migraine!!!! I have a flu bug right now and have had a terrible sinus headache with it, but it is because I am so congested. My throat and chest are congested too. All of this started on Sunday! It is 90 outside and I have an illness you are supposed to get when it is 20! How is that for irony?

    Reply Created with Sketch. reply
  • By Kim Leonoudakis

    @MsPiggyKnows, I’m so happy the implant gave you your life back too. @julia, I’m a Patient Ambassador for the Reed Migraine Center so I’m happy to give my email out to chat if you have more questions. But I can definitely clear up some information about the Reed Procedure and the Omega Procedure. The procedures are the same. Dr. Reed developed the procedure and was in a partnership with a doctor from the Treatment Centers of America. The two doctors ended their partnership and Dr. Reed allowed the other doctor to patent the procedure under a different name to allow them to continue performing the surgery. Good luck Julia and let me know if you have more questions. And you can follow my blog at amigraineurslife.wordpress.com

    Reply Created with Sketch. reply
  • By Julia

    Just seeing this Kim because I hadn’t signed up for notifications on this thread. Do you know anything about neurostimulators placed in the brainstem? This would be formy son, who is so disabled by his condition that he cannot read, use the computer, walk more than 10 steps, or listen to conversation. He is desperate for something that will help his condition.

    Reply Created with Sketch. reply
  • By Julia

    Kim, His continuous headache has been diagnosed as post-traumatic headache, chronic migraine, and transitional migraine.
    Julia

    Reply Created with Sketch. reply
  • By GSD

    Has anyone had HIP/Emblem Health cover their stim surgery? I was referred to an out-of-network surgeon (basically because there’s no surgeon w/in like 30 miles of me in-network). First they denied it, saying it was not medically necessary. I filed an appeal since they did not even contact my doctor(s) who have tried everything else these past 20 yrs, to no avail. They called me back to say the appeal has been denied. Why? Because now they claim the procedure is considered experimental! So, I’m hoping to find at least one person who they did pay for so I can prove that they’re just grasping at any reason just not to have to pay. Thanks!

    Reply Created with Sketch. reply
  • By LKing

    I am in the process of getting approved for the Omega Implant. What I am curious about from a participant is what it feels like to have the implant when it works. Is there is buzzing, or vibration? Like there is with a tens unit? That is my concern. I have had chronic daily headaches that will morph into migraines for 16 years. I have tried all the typical medications, all the usual treatment to include physical therapy, chiropractic therapy, acupuncture, nerve block, radio frequency treatment on my C2, 4 and 5 in my neck for other damage that we hoped would help with my headaches, no such luck. But at least helps with my neck pain. I actually have TMJ and had jaw surgery to realign my jaw, once again hoping it would help with my headaches, no such luck. Currently using Botox and finding it helps with the intensity and the nausea is now gone. But I still have been on Topax and a prescriptive pain treatment which causes rebound headaches. My depression has hit the all time low and I found this blog regarding the omega treatment which caused me to look into it. My insurance does cover it and I have started down that road, so desperate am I. But I worry that it will feel like a tens unit. I tried that for the pain in my neck and it kind of helped, but got to point of being irritating and would exacerbate by headaches. So I am interested on feedback from individuals who have the Omega implant, but I would like feedback from individuals who are not provided by the Migraine Center, where I am looking to have the procedure done. I feel that I would received more honest information.

    Reply Created with Sketch. reply
  • By MsPiggyknows

    LKing-the migraine treatment center will give you the namesof people like me. I did not get any when I had the procedure, but baded on my trial results, my lack of success with anything else, and my total desperation I jumped on the trial-particularly when Insurance approved it. (They would say no to aspirin if they could get away with it!!) That trial was the beginning of the road back to my life. The trial only gave me a tiny glimpse into what the stimulator can do. i can stop 99% of my headaches dead in their tracks. I have helped the people who talked to me before getting their implants learn to adjust them. You have to heal from your surgery first. So, just know that your body may be a bit miffed with you. I had a tough time finding a comfortable sleeping position-I am a total side sleeper, and this procedure will make that out of the question! I also wear glasses which made it sore too. I don’t even notice it anymore. At first it felt like I had a hat on all the time. It wasnt unpleasant or painful. It doesnt make noise. When I really ramp it up I wondered if people could hear it, but they can’t. You have several types of frequencies to choose from. You learn how to adjust it and to know wirhin seconds to five minutes if you are on the right combination or if you need to change it. As I said earlier I have had 6 headaches in 2 years-to me it has been phenomenal. I can do things that I had decided I would NEVER be able to do again. My headaches are caused by a Cervical Vertebrae injury too. I was in a carwreck when I was 22. I have never been the same. I walked around with my vertrbrae more than 5 degrees out of alignment for 6 years. (.5 degrees is considered a major misalignment.) So, the Omeg procedure has given me my life back! If I did not have CVID too I think I would be out in public wuth a full-time job, doing whatever I wanted! I used a TENS unit too. The only TENS that gave me relief was the huge industrial sized one. It did hum. This does not. I think because TENS is external and this is internal. This also actually transects your occipital and trigyminal nerves. (I too have suffered from TMJ-I clench my teeth.) I actually destroyed my mouth guard. This has resolved that issue which was an unexpected bonus! Let me know if I can help you od answer anymore questions.

    Reply Created with Sketch. reply
  • By LKing

    I am still researching the Omega Implant and seeking others input. MsPiggyknows stated that there was no noise to it but she wondered if others could hear it. I received information from the Migraine Center that it sounds as if you were humming inside your own head. Does anyone else have any experiences that they can share? I am really concerned regarding any internal noise, vibration that will cause my migraines as I am sensitive to that. I cannot use a tens unit or go on rides at amusement parks due to the vibrations. My other huge trigger is smells and I just cannot grasp how it can help with that. I would really appreciate any additional feedback. Thank you.

    Reply Created with Sketch. reply
    • By Kim Leonoudakis

      Hi LKing, I have The Reed Procedure. It’s the same as the Omega (both developed by Dr. Reed is my understanding). I do not hear anything. I don’t know if others do but I do not. I only feel it. I would highly recommend doing the trial. It’s simple and an easy procedure to see if it works for you. Hopefully it will. It does not matter that nothing else worked for you, this is very different. I tried everything before this, including the Cefaly device. Here is my blog if you want to read about my experience. Good luck!
      https://amigraineurslife.wordpress.com Mine is very different from Jeanette C. above. My battery is in the top of my hip. I believe some people have it in their chest.

      Reply Created with Sketch. reply
  • By MsPiggyknows

    LKing-The trial should answer your questions. They actually put the leads under your skin. If it bothers you the device is 100% removeable. It does nothing permanent. What do you have yo losd by trying it other than pain? If you are having this much trouble making a decision, this may not be right for you. I was to the point that I had no doubt about it. Dont do something until you feel right about it.

    Reply Created with Sketch. reply
  • By LKing

    The alternate to the Reed Implant is the Omega Implant, through The Migraine Center. Same similar device and procedure just different company. Their website is https://migrainecenters.com

    I am currently in the process of having my consultation with the Doctor next week to have the trial done. I too live in Utah and would have to travel to TX to have it done. My insurance is accepted by them, but it is an out of network. There are other locations, not in Utah, but it depends on your insurance which one they usually approve.

    It is surgery, and there will always be risks with it, but the feedback and research I have been conducting is that it can help, not cure, a person with migraines.

    I would be interested to know what neurologist in Utah you have been working with? Would you mind disclosing that? I have been seeing the Western Neurological Center in Salt Lake, but recently had to switch the doctor within their center and am looking for a new one.

    Reply Created with Sketch. reply
  • By LKing

    Thanks for that information. I too also do Botox. I started it last year. My first round did nothing, the second round helped for about 6 weeks, then the third round lasted longer and with the 4th round I really saw help with the severity of the migraines and it helped lesson the nausea. My neurologist stated that the botox has to build up in your system.

    I found that you absolutely must stay on track with right at the 12 weeks. I had an issue the beginning of this year in March with my insurance. They made me re-prove the necessity and took a month to approve the botox shots so it put me out an additional month from when I should have gotten the next round, and I saw a difference. I felt like I was restarting them for the first time. I had them done just last month and I am only barely starting to feel some help with them. Not like my round from November of 2016.

    So next year, I will remember that and submit the request a month earlier than when I need the injections when it is the first round of the year.

    Reply Created with Sketch. reply
  • By imalp

    I have not had any results with the first round but since the botox didn’t hurt much I am willing to try again and hope for better results the more I try.

    Reply Created with Sketch. reply
  • By angelgirl

    I am getting ready to have the trial done on July 10th and very nervous about getting it done. And about the permanent procedure. What happens if I want the permant one taken out? Or what happens if the battery needs replaced somewhere down the road? Do you carry around a remote that signals your brain? Or how does it work? Have you been able to get off all your migraine meds totally or do you still take the preventative ones? Did you talk to your neurologist first and did he or she support the omega procedure?

    Reply Created with Sketch. reply