First of all thanks for reading, this is the first forum I have ever joined and I have been on here over an hour already reading different stories. The love, compassion and support that I’ve seen on here is amazing.
Sorry this is so long, and maybe I am in the wrong category, but I am still learning.
Ok here is some background. I am a 30 year old female, had a hysterectomy 2 years ago, suffer with severe depressive disorder, OCD, and generalized anxiety disorder. I’ve had 6 suicide attempts since age 16.
HOWEVER, the current medication regimen I am on has kept me “stable” and symptom free for almost two years which is an amazing feat in itself. I found a psychiatrist who is amazing and have been in tons of counseling-I tell you all of this so you can get a mental picture of where I am, and know that the mental issues I have have all been addressed and are in control.
Ok enough background, onto my current issues.
About a year ago I got the first migraine I have had since I was in my very early 20’s. I had 8-10 nerve blocks and went to four neurologists, none of which were willing to help me explore my options. Basically they didn’t know what to do therefore I “couldn’t be helped”. I have been on Neurontin, Topamax, and many other maintenance drugs with a whole other army of rescue drugs. I finally quit taking Neurontin and Topamax because I was having MAJOR cognitive side effects, I was losing words, and everyone around me knew something was major wrong. I would know what I was trying to say but couldn’t find the words.
Now finally my question-how many major headache days are “acceptable”? My migraine is always there, but stays at around a 4 on normal days and that is something I can learn to live with, however I am having approximately 2 episodes a week that last between 2 and 10 days. I realize the length of mine is not a typical migraine, however that’s where I am at right now, and was just curious what other’s thoughts were regarding am acceptable number. At this point if I could get to having one headache per week I would be more than ecstatic!!
Thanks for any and all thoughts/advice!!