I’ve had migraines before. The kind that send me to bed with a sleep mask and an Excedrin. But my migraines were occasional, one every few months. They responded to the rest and Excedrin, and I went about my business.
Last December (2016), I was rear ended at a stop light. The next day, I was driving and all of a sudden had a conscious memory lapse – instantly I couldn’t remember where I was, where I was going, and how to drive a car. It lasted for about two minutes and then just as suddenly, everything came rushing back. I went straight to the ER! I was diagnosed with a concussion. The next 3 months were some of the worst headaches of my life. I had one more memory issue this past spring – very similar, I was also driving at the time. It took 7 months to get healed from concussion symptoms.
I felt pretty good until sometime mid October. A migraine started; it was pretty typical, begins in my right temple and progresses across my head, with accompanying light sensitivity. But it also had sound sensitivity to it, that made it feel more like the concussion headaches I’d been having earlier in the year. And it didn’t go away; it would vary in intensity but after a week, I was concerned enough to call the concussion specialist to make an appointment.
They said it couldn’t be the concussion coming back. So they gave me a referral to the ENT. I’ve had environmental testing done (I’m allergic to all 5 of the local grasses, but that’s it). The allergist thinks it’s migraines triggering allergy symptoms and vice versa. I’m on a prescription for Flonase and have a CT scan of my sinuses on November 30th.
Meanwhile, the daily migraines are accompanied with light and sound sensitivity, occasional nausea, lightheadedness, sluggish thinking, occasional disorientation. I’ve seen my primary care doctor twice in the past month, and I have an mri scheduled for November 22nd. I have an appointment with a migraine specialist, but that’s not until December 28.
Then I had another driving memory lapse, this past Wednesday. I was headed to my counselor for an appointment (I have type 2 bipolar, well managed on gabapentin). In the car, i couldn’t remember how to get to his office. I’ve been going there for the last 3 years, so this wasn’t short term memory issues. It lasted about 2 minutes while I wracked my brain trying to remember my route. Then just as suddenly everything was back, and I was able to get there easily.
Then this past Friday night, or I should say, middle of the night, came the worst headache since the early days of the concussion. Woke me up like a power drill to my temple. So painful, I was pacing the kitchen floor.a 20 on the 1-10 scale. After an hour, i was desperate, I took a 200 mg ibuprofen, a 500mg acetaminophen, a 325mg aspirin, and a 600mg gabapentin. I paced the floor with an ice block held to the side of my grad and wished I could die so I wouldn’t feel the pain. The medicine and ice did their work and it reduced enough that I could go back to bed.
But three next morning, my vision was a little blurry and my brain very slow. I got momentarily lost on my way to a friend’s house. It was asst that point I went to the ER. I was given a series of injections: benadryl, toradol, and reglan. They helped the nausea and lightheadedness, but did nothing for the migraine. The neurology resident saw me, as well. He said he thinks migraines (duh. But it’s the ER.) And possibly temporal lobe seizures. They ran blood tests, all negative, and told me to get an eeg in addition to the mri. They gave me a script for imitrex, just in case.
I’ve had to use one of those imitrex already, this past Monday night. Same scenario, power drill to the head sensation. Defcon 5 level headache. Yesterday I was nonfunctional for about 4 hours; nausea, light sensitivity, lightheadedness, level 8 headache. Missed work and a social event.
Woke up this morning, back to level 6. Seems like I’m between a 4-8, all day every day, and its really wearing me down. So that brings me here, looking for help in hanging on until we get some answers.