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On going Aura, and I can't take much more.

  • By Salz

    Hi, I am new to this forum. I am. 38 years old and have suffered with migraine with aura since I was a teenager. Since I have got older I don’t actually get them that often.
    For 10 days now, I have had an aura in the bottom of my right eye. It comes and goes all day and. all night. Its made worse by the light. Its like a swirling zigzag. It has not affected my vision, I can just see it in the lower part of my eye. With my usual migraines, my visual would be affected. It would usually only last 60 minutes then I would get a very bad headache and nausea.

    Has anyone else had this before? I have had. a headache on and off over the 10 days, along with a neck ache. I have taken paracetamol and 60mg of Codeine, which takes the headache away but I am still left with the aura.I am short sighted and wear glasses. I have recently had my eyes checked and all was ok apart from a small scar on my right eye. I am seeing a neurologist on Monday.

    I am getting very anxious, I have never had anything like this before. Is there anyone out there that has had similar symptoms? It may help calm my anxiety if I could hear other peoples experiences.

    Thanks

    Sally

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  • By Salz

    Is there no one out there with anything similar?

    reply
    • By jenintheaz

      I feel bad when no one responds to my posts. So, hello and I did read your post. 🙂

      No, I rarely get aura. Or, should I say I can’t tell. My light sensitivity is so bad that I wear sunglasses at work all day with my screens at 1%, my office lights off and my window shutters 90% shuttered. So, I don’t know is my answer.

      I am like an agoraphobic shade-loving slug. My symptoms are the above, roaring tinnitus, extreme and persistent vertigo (so obviously nausea), ocular and oracle pain and seizure.

      My point is that you might not find one person with your exact symptoms. It took me five years to realize – looking into the eyes of countless people – that no one will. We are each unique butterflies.

      How are you feeling today? On a scale of 1 to 10? (this was a sarcastic ask) I dread that question. My answer is, “do you really want to know?” or “Is that a trick question?”

      reply
    • By Peggy Artman Moderator

      jenintheaz,
      I’m sorry you have had slow responses from us. Support is what we are here for and we are glad to have you join us. You are correct in concluding that we are all different. I want to encourage you to get help on your eye issues.

      I recently got a thorough eye exam and found out I have all kinds of issues that could be triggering some of the migraine. My eyes feel strained and tired all day and that seems to give me feelings of dizziness and nausea. I found out I’m a glaucoma suspect, have cataracts, and have chronic dry eye. All of these things affect my vision, which may trigger a migraine attack.

      I hope you can find the right specialists that can help you straighten out your many issues. Sometimes we have to see more than one specialist.
      ~ Peggy (Migraine.com team)

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    • By jenintheaz

      Thank you! Unfortuantely, I already was in patient at Mayo Clinic and unless I am willing to go on powerful medication that has other horrible sideffects, I will be managing my migrane with vitamines, acupuncture, yoga and keto.

      reply
  • By Nancy Harris Bonk Moderator

    Hi Salz,

    Welcome to the Migraine.com discussion forum and thank you for sharing your story with us. I’m sorry for the delayed response.

    I typically don’t get visual aura, so I can’t really help you out there. Good to hear you went to the eye doctor to have things checked out, that’s a great first step. I’ll be interested to hear with that neurologist says.

    I’m sure others will be along soon to share their story with you.

    Will you keep me posted?
    Wishing you a low pain day,
    Nancy

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  • By Lacy-dumbmigraines78

    First of all – I love the “wishing you a low pain day” because isn’t it fact that we can all say that if we have a “Low pain day” it was a good day? And on the flip side how sad that really is? I’ll take a “headache” day any day anymore. Because the alternative… is so much worse.

    I just recently joined this site myself. And although I don’t suffer the visual aura’s, I can totally relate to the shades drawn at work, sunglasses on, lights dimmed. It’s to the point that my boss has installed darker shades on my windows for me. We have set up a “temporary” desk area in our storage room where there are no windows in case I need total darkness at work. All I have to to do is say “I’m leaving” and they are wishing me good luck and hope to see me tomorrow. There are days when I’m down in bed for 3 days at a time with alternating ice packs, night masks, fan on to mask any noise I might be able to hear over the ear plugs I’ve taken to wearing, kids sneaking in to give me kisses good night or ask if I need anything. The “joys” of a migraine sufferer – no joy at all. I feel your pain jenintheaz. And Sally – those long lasting for days migraines are so draining! I hope you find some relief soon.

    reply
    • By Nancy Harris Bonk Moderator

      Hi Lacy-dumbmigraines78,

      Welcome to the Migraine.com discussion forum – we’re glad you’re here!

      You’re right – wishing you a low pain day is both good, and on the other hand sad. I hadn’t thought of it in those terms.

      It sounds like you have a wonderful employer who is supportive and understanding, you’re very lucky!!

      I hope to hear more from you,
      Nancy

      reply
  • By Vivmac00

    Hello, I do get auras, so I thought I should say something. But (thank all-that-is-holy!), I only get them before a migraine. I know how much having an aura (in your vision) can mess with you, and I really am genuinely sorry that you are having to deal with that for an extended period of time! I would definitely see an eye doctor – there must be a reason this is happening.

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    • By Nancy Harris Bonk Moderator

      Hi Vivmac00,

      Thank you for sharing your thoughts with us. As I mentioned above I don’t get visual aura with my migraine attacks, but do get sensory aura.

      Even though a migraine attack can have visual disturbances, it is a good idea to see an eye doctor to make sure everything checks out.

      Wishing you a low pain day,
      Nancy

      reply
  • By spriest

    Hello! I also get all kinds of crazy Auras and they have metamorphed over the years.

    My basic one I get before migraine is my fairy lights as I call them…lots of little blinking all over the place in both eyes, I would get that exactly (almost to the exact second) 24 hours before the head pain (I consider the Aura the beginning of the migraine and the headpain is just another symptom).

    I am currently free of any daily med, which I chose because the meds (and I have tried everything) actually made my Auras unpredictable (if you take something daily this could be a cause)….I would get them and they wouldn’t go away or I would get them and that was it…..so I stopped daily meds (noticed beta blockers affected more than any other group). That said, my metamorphed Auras I like to call tunnel, slug ad bugs….The tunnel is like looking through fog or smoke and actually feels like it along with the classic tunnel vision….this can last for awhile and I have yet to figure out any rhyme or reason other than a storm or weather change….my slugs look just like that a big fat weird moving blackness going across my vision over and over for sometimes hours to days (usually only one large portion for slug)…the bugs are smaller (these are just a lot of the slugs only much smaller)….

    Since I have moved to only vitamins I noticed I do not get the slug as often, but when I do I immediately get creeped out because I think it is a real something in my peripheral…very annoying…

    I would say the worst for me is the smoke vision…I am almost completely blind and only once did it last for more than a few days, but it was also one of my worst head pains…due to a sandstorm in the middle east (I was there at the time)…I am sorry you are going through this and we took forever to answer.

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  • By Nancy Harris Bonk Moderator

    Hi spriest,

    Welcome to the discussion forum – we’re glad you found us!

    Thank you for sharing your descriptive journey with us. Those who don’t get aura, will have a clearer understanding of what you go through.

    Wishing you a low pain day,
    Nancy

    reply