I wanted to share my own story since I found so little on the internet about this diagnosis. I am a 30 year old female with no major or unusual medical problems, I’d say I’m pretty healthy. I had my first migraine with aura a few years ago not long after I had my second son. I had never heard of this phenomenon and went to the ER thinking I was going blind. I did not have any pain, just visual disturbances. From that point on I had them very rarely, maybe once a year, with visual symptoms typically disappearing after an hour.
9 days ago I had what I thought was a migraine, I suddenly had blind spots in my vision and my top lip went numb. It was in the evening so I just went to bed. I awoke the next morning with no relief. For the past 9 days I have experienced the following visual symptoms: double vision (most notable and uncomfortable symptom), blind spots including dark and bright spots, light sensitivity, trouble focusing from one image to the next, mild dull eye pain and an overall feeling of strain, increased after images. To put it lightly, my vision is real screwed up. When not working or chasing my kids I’ve spent nearly every free moment in a dark room sleeping or with my eyes closed. It’s unbearable.
3 days in I saw an optician who said I had some “floaters” in my left eye, but nothing else of concern. 5 days in I went to the ER, they did a CT scan and bloodwork and found nothing unusual. 7 days in I saw a second eye doctor who told me my eyes were perfectly healthy. Today I saw a neurologist. He reviewed the CT scan and did some standard tests and found nothing concerning. He finally concluded that although he can’t be 100% certain, he believes I am experiencing Persistent Migraine Aura (PMA). He wants to do an MRI to rule out any other possibilities.
So here I am, struggling with these strange visual disturbances and hoping tomorrow will be the morning I’ll wake up “normal”. The neurologist wants me to take Vitamin B-12 and Magnesium and we will talk about other options after the MRI.
Any advice, thoughts, similar experiences or words of encouragement would be greatly appreciated, thank you!