I created an account just to get a bit of help. I’ve never met anyone with these symptoms or anyone that has faced a situation like this, so I’m incredibly lost.
20 months ago I started, out of the blue, having debilitating symptoms. The best I can describe is brain fog (which is a very irritating thing to describe) or cognitive decline, muscle weakness, fatigue, memory issues, and constant dizzieness. Now, I have had yearly migraines, but they are nothing like this.
My first doctor wouldn’t even give me the time of day – treated me like a hypochondriac and wrote me off. I’ve never had a history of being one, but her treatment of me made me worried I was. I gave up caffeine because due to the fog, I didn’t understand what was happening to myself anymore. I would get jittery and feel nothing but anxious. I couldn’t get through the fog. I used to smoke Cannabis for my chronic pain, but I had heard that over time ones reaction to cannabis can change, so I worried it could have possibly been the case. Haven’t smoked in 20 months, still getting worse. I don’t drink alcohol either.
I immediatly got a therapist. We first thought it could be psychological, so I started working out and did subconscious therapy for my PTSD, even tried medication. It isn’t psychological, not to mention I’ve been working out for 11 months, and every day I still feel weaker, not stronger. My therapist is SURE it isn’t psychological, and I see her weekly for the 20 months of this experience.
Then I was diagnosed with Iron deficient Anemia. Fixed that too. Nothing.
Finally I was sent to a Neurologist. She made me feel reassured – she was sure she knew what was wrong. I had 3 MRI’s. During the 2nd MRI, she found a rather large Pineal Cyst (they never told my, but according to the MRI they gave me about 12-15mm). She felt she had hit the problem for sure.
She sent me to a neurosurgeon. He is hesitent to do the surgery as the risks are immense, although he has done it before to great success.
What I’m essentially asking is there anyone – ANYONE – who has had these symptoms too? Possibly had the surgery? I’m scared, and lost, and I don’t know where to look. If anyone has anything to offer, I’m all ears.