My name is Christine and this is my dad’s account.
We have a issue that no doctor can resolve at this point.
I have a 5yr old son named Christian. When Christian was about 2 years old he started having these dizzy spells, he would wake up in the morning and not want to walk and complain that he is dizzy.
Over the years we have noticed a pattern; the dizzy spells come every 3 months and 2 to 3 days before the dizzy spell he will wake up around 12am and throw up until about 7am, then like clock work 2 to 3 days later he’ll wake up dizzy.
When this first happened when he was about 2 years old his doctor ordered a blood test and also an EKG, when those came back normal and he continued having dizzy spells his doctor referred us to a neurologist.
Over the past 3 years he has had 3 or 4 EEG’s done, even one while he was having a dizzy spell, he also had a 24 hour EEG done in the hospital, he has had his eyes checked, and he was referred to a ear nose and throat doctor which tested his hearing and tested him for vertigo and inner ear problems; all of the tests done to him have come up completely normal.
Up until the dizzy spells he did have a couple medical issues. Pretty much from the time he was born he has had acid reflux which was treated with a couple different acid medications and when he was about 6 months old he was diagnosed with hyptonia; he was physically delayed by a few months, he didn’t sit up on his own till 9 months, he didn’t crawl till 11 months and didn’t walk till 14 months. The hyptonia was treated with physical therapy and that ended when he started walking. So those are the only 2 issues he’s had, other than that he is a healthy boy.
Christian’s neurologist came up with an “exclusionary diagnoses” of migraines, and she put him on Antivert.
Last time he was sick all night long was Aug22nd and on Aug 25th he had a dizzy spell, and the pattern continues every 3 months.
Well Monday morning he woke up around 12am and threw up all night long, and today he woke up dizzy and it’s lasted all day yet again. After his spell in Aug the doctor prescribed him a new medication to try when he as the spells. When he has the dizzy spell I am suppose to give him 1/2 a pill of Antivert and if it continues give him the other half, also Motrin or Tylenol can be given. So I gave him half a pill, about an hour later no help so I gave him Motrin, and about an hour after that he was still dizzy so I gave him the other half of Antivert and still no relief.
Now it’s hard to get what exactly he feels like because he is only 5. But when he wakes up he will not walk without the support of a wall, a hand, or some kind of object; he also grabs the top of his nose near his eye balls like it hurts and he also is very sensitive to light, but he has no nausea during the dizzy spell.
It is very frustrating to have him stay up all night throwing up and 3 days later have one of these dizzy spells. I am not happy with the “exclusionary diagnoses” of migraines, and am not happy that the medication he was given didn’t help one bit. It is also very confusing that the pattern is every 3 months he is sick all night then 3 days later a dizzy spell comes.
I have had many people say its vertigo (but he was tested, and vertigo only every 3 months just doesn’t seem logical), someone mentioned parasites, someone said migraines as well and someone mentioned allergies.
Allergies is the only thing he hasn’t been tested for.
So we are seeking to get a second opinion from another neurologist that will keep looking for a cause and not give us an “exclusionary diagnoses”.
But my dad found this website, so I figured that I would post what’s going on and see if anyone has any similar things happen to themselves or their child.
Opinions and comments would greatly be appreciated.