I have Hx migraine, hormone related. Son Dx at age 13. Now 14. Migraine with aura on Jan 23. Still going on. 4 ED visits, 2 hospital stays. . Occipital nerve block x2. SPG block x2. Been 3 1/2 months with head pain. Now Dx with New Daily Persistent Headaches. But not new??? Can anyone give some insight? Luck with repeated SPG blocks? Pain wise in AM on awakening and especially with standing. Please help…
I have had migraines since I was little. They because much worse after a car accident about 14 years ago. I have tried all kinds of doctors, treatments, and medications. I recently started to get STG blocks. They seemed to help at first but the last two times the side effects have been miserable. My sinuses ache and my nose plugs up and draines a lot. I have also gotten extremely dizzy after a few days. I don’t think I will try the blocks again. Could I be allergic to the medication in the injection? I wish all with migraines a miracle treatment that will cure all. Thanks.
I understand how frustrating migraine disease is. I’m currently seeing my 5th true migraine expert and finally getting somewhere. If you haven’t seen “true” migraine/headache expert, I would encourage you to seek one out. The thing is neurologists may be fine doctors, but have a hard time being experts in one area because they treat so many different conditions such as epilepsy, stroke, multiple sclerosis, Parkinson’s and others. Migraine/headache are board certified in headache medicine, which is different than being certified in neurology. When you get a chance, take a look at this information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.
My mom has been told by local neurologist that she has variant migraines. She has pulsating in her head 24 hours a day 7 days a week for past 2 years. As the day goes on it intensifies. Not better lying down or sleeping. Her MD said he had nothing else to offer (sorry don’t know all the meds she has been on). She is on topomax I know right now which brings pulsating to a 6 rather than 10. Her MD suggested she go to Mayo clinic in Florida (our home state). She called and they say they don’t have any more appointments this year of 2018. Wow and it is only January!? No waiting list. She was a little suspicious because they kept asking her insurance (medicare) before telling her there were no appointments. Anyway, any suggestions of places to go?? We feel let down because it felt like we were going to find out how to help her and the door was shut. They are known for an intense day of testing etc that “should” result in diagnosis and treatment plan.
Thank you for reaching out for your mother – she’s very lucky! I am sorry to hear she is having a difficult time, I understand how frustrating that can be. Let me see what information I can share with you that may be helpful.
I’m sorry the neurologist had nothing else to offer your mother. It sounds like it’s time to see a doctor who is a true expert in treating migraine disease and headache disorders. These doctors may be different from neurologists as they are board certified in headache medicine, which is different than being certified in neurology. There are 29 of these true experts in Florida, which is amazing because there are some states that don’t have any!! Follow this link to find one; http://www.ucns.org/globals/axon/assets/12644.pdf.