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Diagnosis of Migraine & Headache Types

Please help with persistent migraine

  • By BrendaRNMom

    I have Hx migraine, hormone related. Son Dx at age 13. Now 14. Migraine with aura on Jan 23. Still going on. 4 ED visits, 2 hospital stays. . Occipital nerve block x2. SPG block x2. Been 3 1/2 months with head pain. Now Dx with New Daily Persistent Headaches. But not new??? Can anyone give some insight? Luck with repeated SPG blocks? Pain wise in AM on awakening and especially with standing. Please help…

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  • By Nancy Harris Bonk Moderator

    Hi BrendaRNMom,

    Thank you for your question. I wish I had an answer for you, but only a doctor can diagnose us properly. You may want to consider see a “true” migraine/headache expert , one who is board certified in headache medicine which is different than being certified in neurology. Let me share these articles on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/
    and https://migraine.com/blog/really-find-headache-specialist/.

    Let us know how you make out,
    Nancy

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  • By ea333525

    I have had migraines since I was little. They because much worse after a car accident about 14 years ago. I have tried all kinds of doctors, treatments, and medications. I recently started to get STG blocks. They seemed to help at first but the last two times the side effects have been miserable. My sinuses ache and my nose plugs up and draines a lot. I have also gotten extremely dizzy after a few days. I don’t think I will try the blocks again. Could I be allergic to the medication in the injection? I wish all with migraines a miracle treatment that will cure all. Thanks.

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  • By Nancy Harris Bonk Moderator

    Hi ea333525,

    Thank you for your question. I think we all wish there was a quick fix or a “miracle treatment” for migraine disease. Hopefully we’ll see a cure in our lifetime.

    Sinus pain, nasal congestion and drainage are often migraine attack symptoms. In fact most people who think they have a sinus infection are really having a migraine attack. You can read more about that here; https://migraine.com/blog/sinus-headache-or-migraine/.

    Now on to SPG blocks used for pain relief. An allergy is possible, but I wonder if it’s more migraine symptoms. I have a few articles about these you can read here; https://migraine.com/?s=SPG+nerve+block&submit=Go.

    I understand how frustrating migraine disease is. I’m currently seeing my 5th true migraine expert and finally getting somewhere. If you haven’t seen “true” migraine/headache expert, I would encourage you to seek one out. The thing is neurologists may be fine doctors, but have a hard time being experts in one area because they treat so many different conditions such as epilepsy, stroke, multiple sclerosis, Parkinson’s and others. Migraine/headache are board certified in headache medicine, which is different than being certified in neurology. When you get a chance, take a look at this information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    I hope this helps, keep me posted!
    Nancy

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  • By mlb143

    My mom has been told by local neurologist that she has variant migraines. She has pulsating in her head 24 hours a day 7 days a week for past 2 years. As the day goes on it intensifies. Not better lying down or sleeping. Her MD said he had nothing else to offer (sorry don’t know all the meds she has been on). She is on topomax I know right now which brings pulsating to a 6 rather than 10. Her MD suggested she go to Mayo clinic in Florida (our home state). She called and they say they don’t have any more appointments this year of 2018. Wow and it is only January!? No waiting list. She was a little suspicious because they kept asking her insurance (medicare) before telling her there were no appointments. Anyway, any suggestions of places to go?? We feel let down because it felt like we were going to find out how to help her and the door was shut. They are known for an intense day of testing etc that “should” result in diagnosis and treatment plan.

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  • By Nancy Harris Bonk Moderator

    HI mlb143,

    Thank you for reaching out for your mother – she’s very lucky! I am sorry to hear she is having a difficult time, I understand how frustrating that can be. Let me see what information I can share with you that may be helpful.

    I’m sorry the neurologist had nothing else to offer your mother. It sounds like it’s time to see a doctor who is a true expert in treating migraine disease and headache disorders. These doctors may be different from neurologists as they are board certified in headache medicine, which is different than being certified in neurology. There are 29 of these true experts in Florida, which is amazing because there are some states that don’t have any!! Follow this link to find one; http://www.ucns.org/globals/axon/assets/12644.pdf.

    The pulsating in your mother’s head makes me wonder if she should investigate intracranial hypertension, which was formerly called pseudotumor cerebri. This is a condition (which I have) where our body produces too much cerebral spinal fluid or is unable to absorb it. Take a look at this information on this condition; https://migraine.com/blog/migraine-comorbidities-idiopathic-intracranial-hypertension/ and https://migraine.com/blog/migraine-comorbidities-idiopathic-intracranial-hypertension/.

    I hope this helps. Please keep us posted on how your mother is doing.
    Nancy

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