A month ago I was diagnosed with otic migraines, which are related to or possibly a variant of MAV. This migraine affects the auditory portion of my ears and periodically induces small amounts hearing loss, which often does not come back. I also get other migraine symptoms (lightheadedness, tingling, headaches, vertigo, etc.) found in many other forms of migraine.
So far, I have tried two prescription medications to treat them. In June I tried propanerol which turned out to be a disaster for my blood pressure, so I had to discontinue the medication within only 2 weeks of starting it (and it only seemed to make the migraines worse). For the past month I have been on nortryptyline as recommended by my neuro-otologist. Despite upping the doseage several times over the past month, I have had absolutely no success with the medication and my hearing loss has progressed more rapidly than before.
Following the very strict migraine diet has also had no results. While I am pretty inactive due to migraines being set off by several forms of exercise and body movements, I do take nice walks and generally sleep very well.
That being said, have other people found greater success with different medications for MAV? I am desperate to try something else as I really don’t want to lose any more hearing.
Thanks so much for the help!