OK so whining about it won’t make it better I know, but I am so SICK AND TIRED of migraine.
For the last three weeks I have had migraine every day but one. And let me tell you, that was one wonderful day! I am such a different person when I don’t have migraines.
I get silent migraines and these weeks it has been almost a constant state. I am completely useless at work (somehow my typing gets mixed up so my left hand does what I had intended to have my right hand to do), drained emotionally and out of hope. (Well not really but feel like a drama queen right now.)
I have never had a migraine for this long and I just pray for the cycle to end…
I can so relate to you Malin. I have suffered migraines for years but never EVER have I had one for this long. I’m on day 18. On Day 11 I went to my GP and they gave me a shot of Toradol which worked for 10 hours. On day 13 I went to the emergency room and that stayed it off for three days. Now it’s back and I’m at my wit’s end.
I have an appointment with a neurologist but can’t get in for two more weeks. I don’t understand why this one won’t go away.
When we find ourselves in a refractory situation with our Migraine attacks, it is often time to consider a specialist. Migraine and headache specialists have had extensive training outside anything that other doctors have had. This makes them much more likely to be able to help you out of a situation that might be confusing or frustrating for another doctor without the knowledge of a specialist. Here is a link that talks about why a specialist is different: https://migraine.com/blog/how-are-migraine-specialists-different/
I would also like to really encourage you at this point to make an extra special effort to be sure that your overall health is consistently in a really good place. It is often the comorbidities that often affect Migraine that can turn us from an episodic Migraineur into a chronic situation that can be life changing. In my personal case, I ended up with nearly constant visual aura as a result of my thyroid going wonky due to a medication change. I am still recuperating as this takes months sometimes to rectify itself. At least I knew what was the trigger and what to do to get myself through it. I might have been really scared otherwise.
Another thing to consider is the possibility of MOH. chttps://migraine.com/blog/help-how-can-i-not-overuse-migraine-medications/ An enormous percentage of patients end up with Medication Overuse Headache as they try to treat the pain of their Migraine attacks. Finding a Migraine and headache specialist can be really important for appropriate diagnosis and treatment of all these problems. Here is a great link to help you find the specialist closest to you: https://migraine.com/blog/looking-for-a-migraine-specialist/
Thank you Ellen. I am very concerned that I am over-medicating. I am also very concerned and don’t understand why I can be pain free for hours and then it comes back as bad or worse. I am keeping a diary and trying to pinpoint triggers.
I found a neurologist here in the Phoenix area but can’t get in until the 27th. I’m on their cancellation list to try and get in sooner.
I just feel scared and all alone so I’m grateful to have found this forum to be among others who understand. Thank you.
I know what you mean, these last few months have been especially rough for me too. My medications have been switch out four times since October and nothing seems to be helping. No preventative meds work without giving me side effects and breakthroughs haven’t touched my migraines for years. Being my senior year in high school I can’t really afford to miss many days but alas I’ve already been absent 20 days. It doesn’t help that my concentration and cognitive function are pretty much nonexistent now (I went from straight A’s to C’s and B’s).
I know complaining won’t help with anything but sometimes it just feels good to vent 🙂 Hang in there, I know its tough but things are bound to get better. The more you let yourself feel bad about it the harder it is to bounce back. Try not to lose hope!
Just read your post and hope you’re better now. Many of my migraines will last for days and sometimes weeks and I just keep hanging in there – what other choice is there? Everyday is a fight within myself to not give up and just go to bed and stay there. I’ve recently lost my job and (even though it wasn’t the reason stated) I know my migraines had a lot to do with the dismissal. I’ve pretty much given up on my doctors because all they can offer is a medication that might help (but they never do)or they tell me it is hormonal and once I get thru menopause I should have relief. I’m hoping to do better on my own and have drastically changed my diet & life style. In addition, have recently been diagnosed with follicular lymphoma and I’m one of the lucky ones that shouldn’t have to have any kind of treatment for years (we hope).
I just found this website and am thrilled to read posts from other sufferers because it does help to know there are others like me. The opportunity to vent is wonderful because my husband and grown sons don’t suffer from migraines and can’t fathom what I go thru – they try to be supportive and I do appreciate their effort.
Thanks for listening to me – this will be a better day now.
so sorry that so many of you feel the same or worse… It lasted up until last weekend, at a point I didn´t even remember what it felt like to NOT have migraine.
I can´t take any meds other than paracetamol, due to hereditary reasons. My father almost lost his vision due to migraine medication, apparently a one in a million side effect but my doctor (and myself) don´t want to risk that.
Thanks for all your responses, I hope you all feel better. Just like EvelynCraig says, it´s so nice to have a forum like this to vent.