By Stacey A.
Just to give a brief background, I am new to chronic, complex migraines – I’ve had them consistently for over a year, averaging 3-5 migraines a week. Right now I’m on Buspirone 15mg for anxiety, Sumatriptan 100mg for the migraine and Promethazine 25mg for nausea. I have been on Lexapro in the past, but was taken off of it because of consistent trembling and weight gain. I’ve really been struggling hard with all of this, though some days are easier than others – the new prescriptions that I’ve never taken before and generally not knowing from one day to the next how I’m going to really be for the day gets me down. But, something has been happening that I’m not quite sure how to handle so any advice or tips would be great.
I’ve only been taking the Sumatriptan and Buspirone since around June, the Promethazine I’ve taken for over a year, but I’m seeing a pattern emerging with my sleep patterns. Over the winter, I would go almost 24 hours before I would finally get some sleep (I was on the Lexapro then), which would put me at sleeping during the day, up at night. I would be this way for a couple of weeks, then find myself up again for 24 hours before I would go back to sleep and then I was back on a regular schedule, going to bed at 10pm and up around 5-6am. Then, up for 24 hours, back to being awake all night.
The Buspirone has done some funny things to me, mostly that I would feel this enormous fatigue hit me mid-day for no reason (and no warning symptoms of an impending migraine), I would sleep until in the early evening hours and then once I took my evening dose, I would be up until 2-3am before I could finally lay down and sleep. I’ll admit that right now I am not taking my Buspirone, only because I am waiting for my doctor to decide if I can refill or not (she decided to refer me to a headache clinic without realizing I do not have insurance, I am not working right now, I’m fighting for my disability and I can’t afford the $315 first visit fee – that’s for the uninsured patients. A normal visit is $366 – aren’t they being generous.).
The last five days I have not been on a worthy sleep schedule no matter how hard I try and yesterday (Wednesday), I woke up at 10am, stayed up for a couple of hours, went back to bed around noon and slept until around 8pm. It’s now after midnight and I am 100% wide awake, I’m contemplating sweeping my floors – they’re in desperate need of it.
I can feel another sleep switch on the horizon where I’ll be the consummate night-owl (I will be tonight) and I have been wondering since I have been awake if I should just stop fighting the sleep switches and allow them to happen as they will. I try to force myself to sleep at night but I lay in bed looking at the ceiling and when I am awake during the day, it takes everything I have in me to get one thing done because the fatigue is so deep, the only relief is to sleep. Not to mention, sleep deprivation is a massive trigger for me, if I’m up for longer than 24 hours I will be in the emergency room because the migraine is so intense I can’t relieve the pain myself.
I know I need to be on a decent sleep schedule, but I’m not entirely sure what to do. I can’t get to a neurologist yet, not until my disability approved because of the headache center wanted that much, how much is a neurologist going to want?
Like I said, any advice or tips would be fantastic. I’m not sure what to do or what I can do.